LGMD Sub-Type: LGMD2A / Calpainopathy
AT WHAT AGE WERE YOU DIAGNOSED:
I was diagnosed with LGMD when I was 14 years old
WHAT WERE YOUR FIRST SYMPTOMS:
I experienced difficulty in walking, running, and climbing stairs
DO YOU HAVE OTHER FAMILY MEMBERS WHO HAVE LGMD:
No, I am the only person in my family with this diagnosis
WHAT DO YOU FIND TO BE THE GREATEST CHALLENGES IN LIVING WITH LGMD:
The greatest challenge for me is that I cannot do some things such as walking and running. I tried to control my brain to have enough energy to do the activities that I want.
WHAT IS YOUR GREATEST ACCOMPLISHMENT:
One of my biggest achievement is that I have family, friends, and neighbors who encourage me to live a fairly optimistic life.
HOW HAS LGMD INFLUENCED YOU INTO BECOMING THE PERSON YOU ARE TODAY:
I am ready to face all challenges!
WHAT DO YOU WANT THE WORLD TO KNOW ABOUT LGMD:
I want the world to know that a cure is needed to treat and cure all the LGMD patients 🙂
IF YOUR LGMD COULD BE “CURED” TOMORROW, WHAT WOULD BE THE FIRST THING THAT YOU WOULD WANT TO DO:
If I were cure tomorrow, I would run and do everything I never could do!
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