Deceena

Deceena

LGMD “Spotlight Interview” Name:  Deceena   Age: 31 yrs. old Country: USA LGMD Sub-Type:   LGMD2A – also known as Calpainopathy   At what age were you diagnosed: I was diagnosed at the age of 29. What were your first symptoms: Muscle

Kourtney

Kourtney

LGMD “SPOTLIGHT INTERVIEW” Name:  Kourtney                Age: 23 yrs. old Country: USA LGMD Sub-Type:    LGMD2B /  Miyoshi Myopathy At what age were you diagnosed: I was diagnosed at the age of 14. What were your first symptoms: The very first symptom

Karen

Karen

LGMD “Spotlight Interview” Name:  Karen  Age: 54 Yrs. old Country: USA LGMD Sub-Type:  LGMD 2I   At what age were you diagnosed? I was diagnosed at the age of 33. What were your first SYMPTOMS? My first symptom was an

Felix

Felix

LGMD “SPOTLIGHT INTERVIEW” Name:  Felix  Age:  35 yrs. old Country:  Brazil LGMD Sub-Type: LGMD2A / Calpainopathy   At what age were you diagnosed: I was diagnosed at the age of 11. What were your first symptoms: My first symptoms included:

Asher

Asher

LGMD “ Spotlight Interview” Name:  Asher  Age:  10 yrs. old Country:  New Zealand LGMD Sub-Type: Unknown *** (Asher’s mum Chloe assisted with the interview ***   At what age were you diagnosed: Asher was diagnosed when he was 5 years

Ben

Ben

LGMD “SPOTLIGHT INTERVIEW”   Name:  Ben  Age:  23 yrs. old Country: Hong Kong LGMD Sub-Type: LGMD2A / Calpainopathy   At what age were you diagnosed: I was diagnosed at the age of 21. What were your first symptoms: I developed

Ralph

Ralph

Name:  Ralph  Age: 24 yrs. old Country: South Africa LGMD Sub-Type: LGMD2B   At what age were you diagnosed: I was diagnosed at the age of 23 – just after finishing my Rescue Diving Course. What were your first symptoms:

Amanda

Amanda

LGMD SPOTLIGHT INTERVIEW Name:      Amanda      Age: 34 Country:  Canada LGMD Sub-Type:  LGMD2C    AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed at the age of 9. WHAT WERE YOUR FIRST SYMPTOMS: I walked on my toes, and often fell

Darlene

Darlene

LGMD “SPOTLIGHT INTERVIEW”   Name:  Darlene    Age:   65 yrs. old Country:   United States LGMD Sub-Type:    Non-Dysferlin Miyoshi Myopathy   At what age were you diagnosed: I was diagnosed at the age of 64. What were your first symptoms: In retrospect,

Cecilia

Cecilia

LGMD Spotlight Interview Name: Cecilia   AGE: 36 years Country: Argentina LGMD Sub-Type:  LGMD2A/Calpainopathy   At what age were you diagnosed? I was diagnosed when I was 12 years old. What were your first symptoms: I began walking on my toes.

Andrea

Andrea

LGMD “SPOTLIGHT INTERVIEW” Name:   Andrea  Age:  42 yrs. old Country:  United States LGMD Sub-Type:  Collagen 6 Congenital MD (Intermediate on the spectrum between Bethlem and Ullrich CMD) AT WHAT AGE WERE YOU DIAGNOSED: I was first diagnosed at age 6

Adriana

Adriana

LGMD “Spotlight Interview” Name:    Adriana    Age:  48 years old Country:   Argentina LGMD Sub-Type:  LGMD2B   WHAT AGE WERE YOU DIAGNOSED: I was diagnosed at the age 20. WHAT WERE YOUR FIRST SYMPTOMS: My first symptoms included: difficulty climbing stairs, tiredness,

Amie

Amie

LGMD “SPOTLIGHT INTERVIEW” Name:  Amie  Age: 31 yrs old Country: United States LGMD Sub-Type:  LGMD2J (Titinopathy)   At what age were you diagnosed: I was just diagnosed at the age of 31 with LGMD2J – also known as Titinopathy. What

Anna

Anna

LGMD SPOTLIGHT INTERVIEW Name:  Anna   Age:   36 yrs. old Country: Canada LGMD Sub-Type:  LGMD2I   At what age were you diagnosed: I was initially diagnosed with a “non- specific muscle myopathy when I was a young child (sometime in grade

Michele

Michele

LGMD “SPOTLIGHT INTERVIEW”   NAME:  Michele   AGE: 52 Yrs. Old COUNTRY:  United States LGMD Sub-Type:   LGMD2A – Calpainopathy   AT WHAT AGE WERE YOU DIAGNOSED: I was initially diagnosed with an unspecified form of muscular dystrophy at the age of

Melanie

Melanie

LGMD “Spotlight Interview” NAME: Melanie   AGE: 33 COUNTRY: USA LGMD Sub-Type: LGMD2b (Dysferlinopathy/miyoshi myopathy)   AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed one week before my 29th birthday.   WHAT WERE YOU FIRST SYMPTOMS: I could not

Maram

Maram

07/26/2016 – LGMD “Spotlight Interview” NAME:  Maram    AGE: 26 years old COUNTRY: Palestine LGMD Sub-Type: LGMD2E   At what age were you diagnosed: I was diagnosed with muscular dystrophy at the age of 10.  When I was 26 years old, I

Donna-Marie

Donna-Marie

06/24/2016 LGMD “Spotlight Interview” Name:  Donna-Marie      Age: 32 yrs. old Country: United Kingdom LGMD Sub-Type: LGMD2i At what age were you diagnosed: I stared tests at 12 years old, had a Muscular Dystrophy diagnosis at 13 and the

Dave

Dave

05/14/2016: LGMD “Spotlight Interview” Name:  Dave    Age:  27 yrs. old Country: Australia LGMD Sub-Type:  LGMD 2A / Calpainopathy   At what age were you diagnosed: I think I was diagnosed around the age of 14.  I know that it was

Rebecca

Rebecca

04/30/2016  LGMD “Spotlight Interview”   NAME:  Rebecca    AGE: 29 years old COUNTRY:  Australia LGMD Sub-Type:   LGMD2A / Calpainopathy   At what age were you diagnosed: I was diagnosed with LGMD2A when I was 26 years old. What were your first

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