Mary

Mary

04/08/2016 – LGMD “Spotlight Interview” NAME:  Mary   Age: 46 COUNTRY: United States LGMD Sub-Type: LGMD2A / Calpainopathy   At what age were you diagnosed: I was diagnosed with LGMD when I was 25 years old. What were your first symptoms: My

Emily

Emily

03/28/2016 LGMD “SPOTLIGHT INTERVIEW” Name:  Emily     Age: 29 yrs. old Country:  United Kingdom LGMD Sub-Type:  LGMD2B   At what age were you diagnosed: I received confirmation of my LGMD2B diagnosis at the age 28 but at the age of 24

Thomas

Thomas

01/30/2016 LGMD “Spotlight interview” Name:  Thomas                                AGE: 31 COUNTRY: Switzerland LGMD Sub-Type: LGMD 2B / Miyoshi Myopathy   At what age were you diagnosed: My first diagnosis (biopsy) was at 28, followed by the proof with genetic test one year

Laurence

Laurence

“LGMD SPOTLIGHT INTERVIEW” – 01/18/2016 Name:  Laurence    Age: 49 Country: France LGMD Sub-Type: LGMD2A / Calpainopathy   At what age were you diagnosed: I was diagnosed at the age of 42. What were your first symptoms: The symptoms that I

Janet

Janet

LGMD “SPOTLIGHT INTERVIEW”  – 01/07/2016 NAME: Janet   AGE:  33 yrs. old COUNTRY:  United States LGMD Sub-Type:   LGMD2B   AT WHAT AGE WERE YOU DIAGNOSED: I was originally misdiagnosed with Polymyositis at the age of 17.   Years later at the age of

Molly

Molly

11/30/2015 NAME:  Molly    AGE: 29 years old COUNTRY:  United States LGMD Sub-Type:   LGMD2B: dysferlinopathy/Miyoshi Myopathy   At what age were you diagnosed: I started presenting symptoms when I was 17 and at the time I was told I was suffering

Karen

Karen

11/19/2015 Name:  Karen   AGE: 61 yrs. old Country: United States LGMD Sub-Type: LGMD1B / Laminopathy   At what age were you diagnosed: I was diagnosed when I was 54 yrs. old. What were your first symptoms: My first symptoms included: 

Siri

Siri

11/06/2015 NAME:  Siri  AGE:  28 yrs. old COUNTRY:  Norway LGMD Sub-Type: LGMD2A / Calpainopathy   At what age were you diagnosed: I was diagnosed when I was 26 yrs. old. What were your first symptoms: I started experience unexplained fatigue

Annette

Annette

10/16/2016 NAME:  Annette               AGE: 40-50 yrs old COUNTRY:  Ireland LGMD Sub-Type:   LGMD2B   At what age were you diagnosed: I was diagnosed at the age of 38 yrs. old What were your first symptoms: I was stumbling and falling. 

Brad

Brad

09/30/2015: Name:  Brad  Age: 51 yrs. old Country: United States LGMD Sub-Type: LGMD2B/Miyoshi Myopathy   At what age were you diagnosed: I first started having symptoms at 18. But it wasn’t until about 10 years later that a neurologist told

Binh

Binh

09/22/2015:  NAME: Bình  AGE: 30 Country: Vietnam LGMD Sub-Type: LGMD2A / Calpainopathy   AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed with LGMD when I was 14 years old WHAT WERE YOUR FIRST SYMPTOMS:   I experienced difficulty in walking,

Shelley

Shelley

09/08/2015   Name:    Shelley    AGE:  50 COUNTRY:    Canada LGMD Sub-Type:    LGMD2A / Calpainopathy At what age were you diagnosed: I was diagnosed at the age of 11. What were your first symptoms: My first symptoms included walking on my

Sabrina

Sabrina

08/27/2015 Name:    Sabrina      AGE: 32 COUNTRY:  Bangladesh LGMD Sub-Type:  LGMD 2D   At what age were you diagnosed : At the age of 9 years old, I was diagnosed. What were your first symptoms : I was falling frequently and

Martin

Martin

08/18/2015 Name: Martin  AGE: 42 yrs. old Country: United Kingdom LGMD Sub-Type: LGMD2A / Calpainopathy   At what age were you diagnosed: I was diagnosed when I was 23 years old. What were your first symptoms: I had a fall

Patricia

Patricia

07/29/2015: NAME: Patricia  AGE:  26 yrs old COUNTRY: United States LGMD Sub-Type:  LGMD2A / Calpainopathy   AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed with MD when I was 12 years old. WHAT WERE YOUR FIRST SYMPTOMS: First symptoms

Leanne

Leanne

07/22/2015: NAME: Leanne AGE: 50 yrs. old COUNTRY: Australia LGMD Sub-Type: LGMD2A / Calpainopathy AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed at the age of 42 yrs. old through a muscle biopsy. WHAT WERE YOUR FIRST SYMPTOMS: I

Ramesh

Ramesh

07/06/2015:  NAME: Ramesh  AGE: 28 yrs. old COUNTRY: India LGMD Sub-Type: LGMD2B / Dysferlinopathy AT WHAT AGE WERE YOU DIAGNOSED: I started having symptoms at the age of 19 but was not diagnosed until I was about 22 years old.

Rod

Rod

06/25/2015: Name:  Rod   Age: 65 Yrs. Old Country: United States LGMD Sub-Type: LGMD2L /  Anoctaminopathy   At what age were you diagnosed: I was diagnosed at the age of 49. What were your first symptoms: My first symptoms included difficulty

Rinku

Rinku

06/15/2015: Name:  Rinku    Age: 23 Country: INDIA LGMD Sub-Type:   Unknown   At what age were you diagnosed: I was diagnosed at the age of 8 yrs. old. What were your first symptoms: I was falling frequently and had difficulty  with

Rona

Rona

06/04/2015 NAME:  Rona     AGE:  35 Yrs Old  COUNTRY: Philippines LGMD Sub-Type: Unknown   AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed when I was 21 years old. WHAT WERE YOUR FIRST SYMPTOMS: First I noticed  I began to walk

Tarun

Tarun

5-28/2015: Name:  Tarun             Age: 29 yrs. old COUNTY: India LGMD Sub-Type: Unknown   AT WHAT ARE WERE YOU DIAGNOSED: I diagnosed at the age 13. WHAT WERE YOUR FIRST SYMPTOMS: I first noticed muscle weakness at age 13. As a

Andrea

Andrea

05/21/2015:   Name:  Andrea                 Age: 17 yrs. old Country: Norway LGMD Sub-Type: LGMD 1B / Laminopathy At what age were you diagnosed: I was about 6 months old when they discovered that something was wrong, but it wasn’t until

Marjolein

Marjolein

05/15/2015 Name:  Marjolein   Age: 27 yrs. old Country:   The Netherlands LGMD Sub-Type:   LGMD1B / Laminopathy   At what age were you diagnosed: I was diagnosed at the age of 4 with LGMD but the sub-type was unknown.  At the age

Claudette

Claudette

05/7/2015 Name: Claudette Age: 51 yrs. old Country: Canada LGMD Sub-Type: LGMD1A / Myotilinopathy AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed at the age of 39. WHAT WERE YOUR FIRST SYMPTOMS: My first symptoms included: difficulty with stairs, shoulder

Alicia

Alicia

04/29/2015 Name:  Alicia Age:  38 yrs. old Country: United States LGMD Sub-Type: LGMD2A / Calpainopathy   At what age were you diagnosed: I was diagnosed at age 35 after years & years of being misdiagnosed. What were your first symptoms:

Audrey

Audrey

04/25/2015 NAME:  Audrey AGE: 42 Yrs. Old COUNTRY: United States LGMD Sub-Type: LGMD2i AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed with LGMD when I was 37. I had never heard of it before my diagnosis. WHAT WERE YOUR

Jane

Jane

04/20/2015: Name:  Jane Age:  18 yrs. old Country:   United Stated LGMD Sub-Type:  LGMD2i   At what age were you diagnosed: I was diagnosed when I was 5 years old. What were your first symptoms: I was experiencing difficult climbing stairs

Freddy

Freddy

04/14/2015 NAME:  Freddy   AGE: 49 Yrs. Old COUNTRY:  Denmark LGMD Sub-Type:   LGMD2A – Calpainopathy   AT WHAT AGE WERE YOU DIAGNOSED: I was initially diagnosed with LGMD at the age of 29 years old.  Around my 34th  birthday I received

Melissa

Melissa

04/08/2015 NAME:   Melissa  AGE:  47 Yrs. Old COUNTRY:  United States LGMD Sub-Type:  LGMD2i AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed at the age of 18 WHAT WERE YOUR FIRST SYMPTOMS: As a child, I was clumsy. DO

Lacey

Lacey

04/03/2015 NAME:  Lacey    AGE: 42 COUNTRY: United States LGMD Sub-Type: LGMD2i   AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed with Muscular Dystrophy at 16 and LGMD2i at 34. Both diagnosis’ came over the phone. In hindsight, I wish the doctors would

Eva

Eva

03/31/2015 Name:  Eva    Age: 33 Yrs. Old Country:  Kenya LGMD Sub-Type :  Unknown AT WHAT AGE WERE YOU DIAGNOSED:  I was diagnosed at the age of 14. WHAT WERE YOUR FIRST SYMPTOMS: I had difficulty running fast and raising my

Jane

Jane

03/22/2015 NAME:  Jane   AGE: 61 COUNTRY: United States LGMD Sub-Type: unknown AT WHAT AGE WERE YOU DIAGNOSED? I was “officially” diagnosed at age 46 but I had symptoms in my late 30’s. WHAT WERE YOUR FIRST SYMPTOMS? I was the

Donavon

Donavon

03/12/2015: Name: Donavon  Age: 52 Country: United States LGMD Sub-Type: LGMD2D At what age were you diagnosed: I was diagnosed at the age of 16 What were your first symptoms: I was never able to run very fast and had

Nikita

Nikita

03/06/2015: Name: Nikita    Age: 27 Yrs. Country: India LGMD Sub-Type:  unknown At what age were you diagnosed: Symptoms since I was 21Yrs What were your first symptoms: Tripping while running , tiredness on climbing for long. Do you have other

Julianna

Julianna

03/01/2015: NAME: Julianna AGE: 24 COUNTRY: United States LGMD Sub-Type: LGMD2B AT WHAT AGE WERE YOU DIAGNOSED: I started having symptoms at the age of 16 but was not diagnosed until I was about 22 years old. WHAT WERE YOUR

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