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International LGMD Patient Registries

Have you &/or a family member received genetic confirmation of your Limb Girdle Muscular Dystrophy (LGMD) sub-type?  If so, please be sure to have your name and information entered in the PATIENT REGISTRY for that diagnosis.

When you register, you may have access to the following services, depending on the registry:

  • General information about your disease
  • Help finding appropriate experts (both scientific and clinical) in your country or area
  • Information about ongoing or upcoming clinical trials relevant to your disease
  • A source of knowledge about treatment options that are under development

PATIENT REGISTRY PER CONFIRMED DIAGNOSIS:

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