Proclamations – Volunteers Needed

Global LGMD Awareness Day-5

State Proclamations Requests

Volunteers Needed!

We need your help by ‘adopting’ a state and submitting a request for that state to issue a proclamation for Limb Girdle Muscular Dystrophy Awareness Day.  Usually, it takes less than an hour of your time to submit these requests.

In order to help spread awareness in the United States, we have prepared a State List to help you in contacting a State and requesting a proclamation.  Most states have an online process to streamline the request they receive.   Please be sure to adhere to the timeline indicated on the list as states have different requirements to the time frame in which they will accept and process a proclamation request.

Are you interested in “adopting” a State to request a Proclamation?  If so, please complete the form below so we can update our list.  (Only one proclamation per State is usually granted per Awareness Day per year.) 

Sample Proclamations Documents to customize:

Special Guidelines for State Legislatures

If you know a member of the state legislature personally, approach that person regarding the passage of the proclamation. If you don’t have this connection, phone the state legislator’s office to determine the name of the staff person who handles proclamations or resolutions. When you talk with that person, make sure to stress your local connection.

Offer the sample state proclamation and sample cover letter. Find out if and when the legislature will pass the proclamation, and let the staff person know you are willing to meet him/her or attend any related meeting in person or by your representative. Indicate your interest in gaining news coverage of the proclamation, and ask if there is a staff person who can assist you. If not, offer to take a photo to accompany the news release you will produce, then contact the local news media yourself.

Special Guidelines for Mayor’s Offices and Town/City Councils

Adapt the above guidelines to your local mayor and town/city council. Modify the sample proclamation or the sample cover letter to reflect your community.

 

AFTER A PROCLAMATION HAS BEEN ISSUED:

  1. Seek publicity after the governor or local official approves the proclamation. It is great to have a state/local community adopt the proclamation…it is even better to have the local newspaper report the action!
  2. If possible, plan to attend or send a representative to the meeting when the proclamation is being adopted. Frequently, the governor’s office will present a quality copy to an appropriate recipient.  Take photos. Also, modify and disseminate your Limb Girdle Muscular Dystrophy Awareness Day press release (contact lgmd.day@gmail.com if you need help) to the appropriate news media in your state. Try to have a photo and news release in your endorsing organization’s newsletter or other appropriate publications.
  3. Be sure to send a follow-up thank you to the governor  &/ local officials for the proclamation(s).
  4. Keep good records of what works and what doesn’t work this year, whom you contacted, and who made contacts in your state.  (This will be beneficial for next year’s event)
  5. Please send copies of all proclamations and publicity to: Limb Girdle Muscular Dystrophy Awareness Day    lgmd.day@gmail.com or mail them to:   Limb Girdle Muscular Dystrophy Awareness Day – Attention:  Carol Abraham, 638 Kennedy Dr., Twin Lakes, WI  53181

 

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