Ben

Ben

LGMD “SPOTLIGHT INTERVIEW”   Name:  Ben  Age:  23 yrs. old Country: Hong Kong LGMD Sub-Type: LGMD2A / Calpainopathy   At what age were you diagnosed: I was diagnosed at the age of 21. What were your first symptoms: I developed

Ralph

Ralph

Name:  Ralph  Age: 24 yrs. old Country: South Africa LGMD Sub-Type: LGMD2B   At what age were you diagnosed: I was diagnosed at the age of 23 – just after finishing my Rescue Diving Course. What were your first symptoms:

Amanda

Amanda

LGMD SPOTLIGHT INTERVIEW Name:      Amanda      Age: 34 Country:  Canada LGMD Sub-Type:  LGMD2C    AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed at the age of 9. WHAT WERE YOUR FIRST SYMPTOMS: I walked on my toes, and often fell

Darlene

Darlene

LGMD “SPOTLIGHT INTERVIEW”   Name:  Darlene    Age:   65 yrs. old Country:   United States LGMD Sub-Type:    Non-Dysferlin Miyoshi Myopathy   At what age were you diagnosed: I was diagnosed at the age of 64. What were your first symptoms: In retrospect,

Cecilia

Cecilia

LGMD Spotlight Interview Name: Cecilia   AGE: 36 years Country: Argentina LGMD Sub-Type:  LGMD2A/Calpainopathy   At what age were you diagnosed? I was diagnosed when I was 12 years old. What were your first symptoms: I began walking on my toes.

Andrea

Andrea

LGMD “SPOTLIGHT INTERVIEW” Name:   Andrea  Age:  42 yrs. old Country:  United States LGMD Sub-Type:  Collagen 6 Congenital MD (Intermediate on the spectrum between Bethlem and Ullrich CMD) AT WHAT AGE WERE YOU DIAGNOSED: I was first diagnosed at age 6

Adriana

Adriana

LGMD “Spotlight Interview” Name:    Adriana    Age:  48 years old Country:   Argentina LGMD Sub-Type:  LGMD2B   WHAT AGE WERE YOU DIAGNOSED: I was diagnosed at the age 20. WHAT WERE YOUR FIRST SYMPTOMS: My first symptoms included: difficulty climbing stairs, tiredness,

Amie

Amie

LGMD “SPOTLIGHT INTERVIEW” Name:  Amie  Age: 31 yrs old Country: United States LGMD Sub-Type:  LGMD2J (Titinopathy)   At what age were you diagnosed: I was just diagnosed at the age of 31 with LGMD2J – also known as Titinopathy. What

Anna

Anna

LGMD SPOTLIGHT INTERVIEW Name:  Anna   Age:   36 yrs. old Country: Canada LGMD Sub-Type:  LGMD2I   At what age were you diagnosed: I was initially diagnosed with a “non- specific muscle myopathy when I was a young child (sometime in grade

Michele

Michele

LGMD “SPOTLIGHT INTERVIEW”   NAME:  Michele   AGE: 52 Yrs. Old COUNTRY:  United States LGMD Sub-Type:   LGMD2A – Calpainopathy   AT WHAT AGE WERE YOU DIAGNOSED: I was initially diagnosed with an unspecified form of muscular dystrophy at the age of

Melanie

Melanie

LGMD “Spotlight Interview” NAME: Melanie   AGE: 33 COUNTRY: USA LGMD Sub-Type: LGMD2b (Dysferlinopathy/miyoshi myopathy)   AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed one week before my 29th birthday.   WHAT WERE YOU FIRST SYMPTOMS: I could not

Maram

Maram

07/26/2016 – LGMD “Spotlight Interview” NAME:  Maram    AGE: 26 years old COUNTRY: Palestine LGMD Sub-Type: LGMD2E   At what age were you diagnosed: I was diagnosed with muscular dystrophy at the age of 10.  When I was 26 years old, I

Donna-Marie

Donna-Marie

06/24/2016 LGMD “Spotlight Interview” Name:  Donna-Marie      Age: 32 yrs. old Country: United Kingdom LGMD Sub-Type: LGMD2i At what age were you diagnosed: I stared tests at 12 years old, had a Muscular Dystrophy diagnosis at 13 and the

Dave

Dave

05/14/2016: LGMD “Spotlight Interview” Name:  Dave    Age:  27 yrs. old Country: Australia LGMD Sub-Type:  LGMD 2A / Calpainopathy   At what age were you diagnosed: I think I was diagnosed around the age of 14.  I know that it was

Rebecca

Rebecca

04/30/2016  LGMD “Spotlight Interview”   NAME:  Rebecca    AGE: 29 years old COUNTRY:  Australia LGMD Sub-Type:   LGMD2A / Calpainopathy   At what age were you diagnosed: I was diagnosed with LGMD2A when I was 26 years old. What were your first

Mary

Mary

04/08/2016 – LGMD “Spotlight Interview” NAME:  Mary   Age: 46 COUNTRY: United States LGMD Sub-Type: LGMD2A / Calpainopathy   At what age were you diagnosed: I was diagnosed with LGMD when I was 25 years old. What were your first symptoms: My

Emily

Emily

03/28/2016 LGMD “SPOTLIGHT INTERVIEW” Name:  Emily     Age: 29 yrs. old Country:  United Kingdom LGMD Sub-Type:  LGMD2B   At what age were you diagnosed: I received confirmation of my LGMD2B diagnosis at the age 28 but at the age of 24

Thomas

Thomas

01/30/2016 LGMD “Spotlight interview” Name:  Thomas                                AGE: 31 COUNTRY: Switzerland LGMD Sub-Type: LGMD 2B / Miyoshi Myopathy   At what age were you diagnosed: My first diagnosis (biopsy) was at 28, followed by the proof with genetic test one year

Laurence

Laurence

“LGMD SPOTLIGHT INTERVIEW” – 01/18/2016 Name:  Laurence    Age: 49 Country: France LGMD Sub-Type: LGMD2A / Calpainopathy   At what age were you diagnosed: I was diagnosed at the age of 42. What were your first symptoms: The symptoms that I

Janet

Janet

LGMD “SPOTLIGHT INTERVIEW”  – 01/07/2016 NAME: Janet   AGE:  33 yrs. old COUNTRY:  United States LGMD Sub-Type:   LGMD2B   AT WHAT AGE WERE YOU DIAGNOSED: I was originally misdiagnosed with Polymyositis at the age of 17.   Years later at the age of

Molly

Molly

11/30/2015 NAME:  Molly    AGE: 29 years old COUNTRY:  United States LGMD Sub-Type:   LGMD2B: dysferlinopathy/Miyoshi Myopathy   At what age were you diagnosed: I started presenting symptoms when I was 17 and at the time I was told I was suffering

Karen

Karen

11/19/2015 Name:  Karen   AGE: 61 yrs. old Country: United States LGMD Sub-Type: LGMD1B / Laminopathy   At what age were you diagnosed: I was diagnosed when I was 54 yrs. old. What were your first symptoms: My first symptoms included: 

Siri

Siri

11/06/2015 NAME:  Siri  AGE:  28 yrs. old COUNTRY:  Norway LGMD Sub-Type: LGMD2A / Calpainopathy   At what age were you diagnosed: I was diagnosed when I was 26 yrs. old. What were your first symptoms: I started experience unexplained fatigue

Annette

Annette

10/16/2016 NAME:  Annette               AGE: 40-50 yrs old COUNTRY:  Ireland LGMD Sub-Type:   LGMD2B   At what age were you diagnosed: I was diagnosed at the age of 38 yrs. old What were your first symptoms: I was stumbling and falling. 

Brad

Brad

09/30/2015: Name:  Brad  Age: 51 yrs. old Country: United States LGMD Sub-Type: LGMD2B/Miyoshi Myopathy   At what age were you diagnosed: I first started having symptoms at 18. But it wasn’t until about 10 years later that a neurologist told

Binh

Binh

09/22/2015:  NAME: Bình  AGE: 30 Country: Vietnam LGMD Sub-Type: LGMD2A / Calpainopathy   AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed with LGMD when I was 14 years old WHAT WERE YOUR FIRST SYMPTOMS:   I experienced difficulty in walking,

Shelley

Shelley

09/08/2015   Name:    Shelley    AGE:  50 COUNTRY:    Canada LGMD Sub-Type:    LGMD2A / Calpainopathy At what age were you diagnosed: I was diagnosed at the age of 11. What were your first symptoms: My first symptoms included walking on my

Sabrina

Sabrina

08/27/2015 Name:    Sabrina      AGE: 32 COUNTRY:  Bangladesh LGMD Sub-Type:  LGMD 2D   At what age were you diagnosed : At the age of 9 years old, I was diagnosed. What were your first symptoms : I was falling frequently and

Martin

Martin

08/18/2015 Name: Martin  AGE: 42 yrs. old Country: United Kingdom LGMD Sub-Type: LGMD2A / Calpainopathy   At what age were you diagnosed: I was diagnosed when I was 23 years old. What were your first symptoms: I had a fall

Patricia

Patricia

07/29/2015: NAME: Patricia  AGE:  26 yrs old COUNTRY: United States LGMD Sub-Type:  LGMD2A / Calpainopathy   AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed with MD when I was 12 years old. WHAT WERE YOUR FIRST SYMPTOMS: First symptoms

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