Leanne

Leanne

07/22/2015: NAME: Leanne AGE: 50 yrs. old COUNTRY: Australia LGMD Sub-Type: LGMD2A / Calpainopathy AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed at the age of 42 yrs. old through a muscle biopsy. WHAT WERE YOUR FIRST SYMPTOMS: I

Ramesh

Ramesh

07/06/2015:  NAME: Ramesh  AGE: 28 yrs. old COUNTRY: India LGMD Sub-Type: LGMD2B / Dysferlinopathy AT WHAT AGE WERE YOU DIAGNOSED: I started having symptoms at the age of 19 but was not diagnosed until I was about 22 years old.

Rod

Rod

06/25/2015: Name:  Rod   Age: 65 Yrs. Old Country: United States LGMD Sub-Type: LGMD2L /  Anoctaminopathy   At what age were you diagnosed: I was diagnosed at the age of 49. What were your first symptoms: My first symptoms included difficulty

Rinku

Rinku

06/15/2015: Name:  Rinku    Age: 23 Country: INDIA LGMD Sub-Type:   Unknown   At what age were you diagnosed: I was diagnosed at the age of 8 yrs. old. What were your first symptoms: I was falling frequently and had difficulty  with

Rona

Rona

06/04/2015 NAME:  Rona     AGE:  35 Yrs Old  COUNTRY: Philippines LGMD Sub-Type: Unknown   AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed when I was 21 years old. WHAT WERE YOUR FIRST SYMPTOMS: First I noticed  I began to walk

Tarun

Tarun

5-28/2015: Name:  Tarun             Age: 29 yrs. old COUNTY: India LGMD Sub-Type: Unknown   AT WHAT ARE WERE YOU DIAGNOSED: I diagnosed at the age 13. WHAT WERE YOUR FIRST SYMPTOMS: I first noticed muscle weakness at age 13. As a

Andrea

Andrea

05/21/2015:   Name:  Andrea                 Age: 17 yrs. old Country: Norway LGMD Sub-Type: LGMD 1B / Laminopathy At what age were you diagnosed: I was about 6 months old when they discovered that something was wrong, but it wasn’t until

Marjolein

Marjolein

05/15/2015 Name:  Marjolein   Age: 27 yrs. old Country:   The Netherlands LGMD Sub-Type:   LGMD1B / Laminopathy   At what age were you diagnosed: I was diagnosed at the age of 4 with LGMD but the sub-type was unknown.  At the age

Claudette

Claudette

05/7/2015 Name: Claudette Age: 51 yrs. old Country: Canada LGMD Sub-Type: LGMD1A / Myotilinopathy AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed at the age of 39. WHAT WERE YOUR FIRST SYMPTOMS: My first symptoms included: difficulty with stairs, shoulder

Alicia

Alicia

04/29/2015 Name:  Alicia Age:  38 yrs. old Country: United States LGMD Sub-Type: LGMD2A / Calpainopathy   At what age were you diagnosed: I was diagnosed at age 35 after years & years of being misdiagnosed. What were your first symptoms:

Audrey

Audrey

04/25/2015 NAME:  Audrey AGE: 42 Yrs. Old COUNTRY: United States LGMD Sub-Type: LGMD2i AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed with LGMD when I was 37. I had never heard of it before my diagnosis. WHAT WERE YOUR

Jane

Jane

04/20/2015: Name:  Jane Age:  18 yrs. old Country:   United Stated LGMD Sub-Type:  LGMD2i   At what age were you diagnosed: I was diagnosed when I was 5 years old. What were your first symptoms: I was experiencing difficult climbing stairs

Freddy

Freddy

04/14/2015 NAME:  Freddy   AGE: 49 Yrs. Old COUNTRY:  Denmark LGMD Sub-Type:   LGMD2A – Calpainopathy   AT WHAT AGE WERE YOU DIAGNOSED: I was initially diagnosed with LGMD at the age of 29 years old.  Around my 34th  birthday I received

Melissa

Melissa

04/08/2015 NAME:   Melissa  AGE:  47 Yrs. Old COUNTRY:  United States LGMD Sub-Type:  LGMD2i AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed at the age of 18 WHAT WERE YOUR FIRST SYMPTOMS: As a child, I was clumsy. DO

Lacey

Lacey

04/03/2015 NAME:  Lacey    AGE: 42 COUNTRY: United States LGMD Sub-Type: LGMD2i   AT WHAT AGE WERE YOU DIAGNOSED: I was diagnosed with Muscular Dystrophy at 16 and LGMD2i at 34. Both diagnosis’ came over the phone. In hindsight, I wish the doctors would

Eva

Eva

03/31/2015 Name:  Eva    Age: 33 Yrs. Old Country:  Kenya LGMD Sub-Type :  Unknown AT WHAT AGE WERE YOU DIAGNOSED:  I was diagnosed at the age of 14. WHAT WERE YOUR FIRST SYMPTOMS: I had difficulty running fast and raising my

Jane

Jane

03/22/2015 NAME:  Jane   AGE: 61 COUNTRY: United States LGMD Sub-Type: unknown AT WHAT AGE WERE YOU DIAGNOSED? I was “officially” diagnosed at age 46 but I had symptoms in my late 30’s. WHAT WERE YOUR FIRST SYMPTOMS? I was the

Donavon

Donavon

03/12/2015: Name: Donavon  Age: 52 Country: United States LGMD Sub-Type: LGMD2D At what age were you diagnosed: I was diagnosed at the age of 16 What were your first symptoms: I was never able to run very fast and had

Nikita

Nikita

03/06/2015: Name: Nikita    Age: 27 Yrs. Country: India LGMD Sub-Type:  unknown At what age were you diagnosed: Symptoms since I was 21Yrs What were your first symptoms: Tripping while running , tiredness on climbing for long. Do you have other

Julianna

Julianna

03/01/2015: NAME: Julianna AGE: 24 COUNTRY: United States LGMD Sub-Type: LGMD2B AT WHAT AGE WERE YOU DIAGNOSED: I started having symptoms at the age of 16 but was not diagnosed until I was about 22 years old. WHAT WERE YOUR

Andrew

Andrew

01/24/2015:  NAME: Andrew     AGE: 34 COUNTRY: United Kingdom LGMD Sub-Type: LGMD 2A / Calpainopathy AT WHAT AGE WHERE YOU DIAGNOSED: 18 yrs. old WHAT WERE YOUR FIRST SYMPTOMS: I would fall over when trying to run & also struggling standing

Irina

Irina

01/12/2015: NAME: Irina  AGE: 18 COUNTRY: France LGMD Sub-Type: LGMD 2A / Calpainopathy AT WHAT AGE WERE YOU DIAGNOSED: When I was 14 years old. WHAT WERE YOUR FIRST SYMPTOMS: The first symptom that I experienced was having difficulty running.

Martijn

Martijn

01/06/2015: NAME: Martijn     AGE: 23 COUNTRY: The Netherlands LGMD Sub-Type: LGMD 2A / Calpainopathy AT WHAT AGE WERE YOU DIAGNOSED:  Approximately around my 15th birthday. WHAT WERE YOUR FIRST SYMPTOMS: The first symptoms were visible since I was a baby.

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