COUNTRY: United States
LGMD Sub-Type: LGMD2i
AT WHAT AGE WERE YOU DIAGNOSED:
I was diagnosed at the age of 18
WHAT WERE YOUR FIRST SYMPTOMS:
As a child, I was clumsy.
DO YOU HAVE OTHER FAMILY MEMBERS WHO HAVE LGMD:
No, I am the only member in my family diagnosed with limb girdle muscular dystrophy.
WHAT DO YOU FIND TO BE THE GREATEST CHALLENGES IN LIVING WITH LGMD:
The greatest challenge for me is not being able to get up from a chair.
WHAT IS YOUR GREATEST ACCOMPLISHMENT:
My greatest accomplishment is growing my non-profit, Legacy Counseling Center, into a one and a half million dollar organization that helps thousands of people annually.
HOW HAS LGMD INFLUENCED YOU INTO BECOMING THE PERSON YOU ARE TODAY:
I changed my career choice to something that would be wheelchair friendly, in case I would ever be in that position.
WHAT DO YOU WANT THE WORLD TO KNOW ABOUT LGMD:
At the moment there is no treatment or cure.
IF YOUR LGMD COULD BE “CURED” TOMORROW, WHAT WOULD BE THE FIRST THING THAT YOU WOULD WANT TO DO:
I would travel without boundaries like I used to.