LGMD Sub-Type: Unknown
At what age were you diagnosed:
I was diagnosed when I was 25 years old.
What were your first symptoms:
When I was a baby, my neck muscles were too weak and I had difficulty holding my head up. I was delayed and didn’t start to walk until I was 4year old. I stopped walking at the age of 14.
Do you have other family members who have LGMD:
NO , I’m the only person in my family who has this disease.
What do you find to be the greatest challenges in living with LGMD: For me the greatest challenge is that I cannot do some things such as walking, running. stand without help, get dressed, etc. I tried to control my activities so that I have enough energy to do the activities that I want to do.
What is your greatest accomplishment:
One of the biggest achievement in my life is that I have real great parents, friends, and colleagues who encourage me to live a fairly optimistic life and let me forget about my disability.
How has LGMD influenced you into becoming the person you are today:
I have become more insensitive to pain and I’m not fearful of any challenges
What do you want the world to know about LGMD:
I want the world to know that people with LGMD may need more help to live independently – such as a personal care attendant, improved access to adaptive and assistive equipment as well as medicines. A cure and treatment is needed to treat all the LGMD patients.
If your LGMD could be “cured” tomorrow, what would be the first thing that you would want to do:
I think if I were cure tomorrow, I would run and do everything I never could do!
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