Are you

  • An Individual Living with Limb Girdle Muscular Dystrophy (LGMD)?
  • A Researcher working to find a cure and treatment for LGMD?
  • A Representative from an organization focused on LGMD?

If so, please consider volunteering to be featured in an upcoming “LGMD Spotlight Interview.” By telling your story and sharing your experiences, you can help raise awareness of LGMD.  You can play an important role in this global awareness campaign.

If you are interested in sharing your story, please complete the questionnaire and release form provided below that fits your appropriate category.

LGMD Spotlight Interview Resources

Individual with LGMD:

Questionnaire for Individuals to Complete

Release of Information Form

  • Please Note:  Completed questionnaire, signed release form and your .jpeg photo should be returned via e-mail

LGMD Researcher:

Questionnaire for Researchers to Complete

Release of Information Form

  • Please Note:  Completed questionnaire, signed release form and your .jpeg photo should be returned via e-mail

LGMD Organization:

Questionnaire for Organizations to Complete is available on-line

  • Please Note:  Please submit a .jpeg copy of your logo and an optional group photo via e-mail after completing the questionnaire

Facebook__Find_us_on_2   twitter-follow

Volunteer to be Featured