LGMD "Spotlight Interview"

Name:  Keisha  Alter: 31 Jahre alt

Land: Vereinigte Staaten

LGMD Unter-Typ : Unknown

 

In welchem Alter wurde bei Ihnen die Diagnose gestellt?:

I was diagnosed about 5 years ago at the age of 25-26.

Was waren Ihre ersten Symptome?:

I noticed that I was repeatedly falling and that my leg would give out without any warning.  I also recall that I was unable to raise my right arm unless I had assistance.

Haben Sie andere Familienmitglieder, die LGMD haben?

So far, no one in my family has muscular dystrophy but I plan to have my parents tested to see if they are carriers.

Was sind für Sie die größten Herausforderungen im Leben mit LGMD?:

One of the greatest challenges is always having to plan ahead – if going out with friends or family to make sure the place is handicapped accessible.  Every day it also takes me longer to get dressed in the morning.

Was ist Ihre größte Errungenschaft?:

Coming to the fact that I have LGMD and still trying to figure out which form of LGMD.  And learning to embrace it.

Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind?

I feel LGMD has made me an unique individual helped me to bring awareness of the disease to others that don’t know much about it.  Having LGMD has helped me to become stronger and more independent.  I know that having LGMD is a part of me, I am human and still have my days just like anyone else.  I am a strong and proud woman with LGMD.

Was möchten Sie der Welt über LGMD mitteilen?:

LGMD is something that currently has no cure.  It is something that won’t go away.  Physical therapy and aquatic therapy help manage the disease.  Even with LGMD, we are still strong and can live a normal life just like anyone else.

Wenn Ihre LGMD morgen "geheilt" werden könnte, was würden Sie als Erstes tun wollen?:

If I could be cured tomorrow, I would want to run a marathon, run up and down the stairs, and take a big vacation somewhere to celebrate!

 

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