Name:       Buck

Alter:           31 years old

Land:   Unites States of America

LGMD Unter-Typ:  LGMD 2L / R12

 

In welchem Alter wurde bei Ihnen die Diagnose gestellt??

I was diagnosed at the age of 28.

Was waren Ihre ersten SYMPTOME?

My initials symptoms included weakness and pain in my legs, difficulty climbing stairs and it was hard to stand up from the ground.

Haben Sie andere Familienmitglieder, die an LGMD leiden?

I do not have any known relatives that have been diagnosed with LGMD.

Was sind für Sie die größten Herausforderungen im Leben mit LGMD??

Chronic pain is my greatest challenge with LGMD.

Was ist Ihr größter ERFOLG?

I am still working on my greatest accomplishment but for now I have three beautiful children that I am focusing on.

Wie hat LGMD Sie zu der Person gemacht, die Sie heute sind?

I have always had a great work ethic, always able to accomplish what I put my mind to.  Because of my disability, things are hard to get done but I never give up.  I have been able to stay positive and encouraging to others.

Was möchten Sie der Welt über LGMD mitteilen??

I want the world to know that this disease is life changing and it can be extremely hard at times.  Unfortunately, there isn’t a lot of support for LGMD.  Hopefully raising awareness can lead to better support for people living with this disease.

Wenn Ihre LGMD morgen "geheilt" werden könnte, was würden Sie als Erstes tun wollen??

If I could be cured tomorrow, I would go to a trampoline park with my kids!  It is the small things in life that I cherish now.