LGMD "Entrevista en primer plano"

Nombre:  Keisha  Edad: 31 yrs. old

País: Estados Unidos

Subtipo LGMD : Unknown

 

¿A qué edad le diagnosticaron:

I was diagnosed about 5 years ago at the age of 25-26.

¿Cuáles fueron sus primeros síntomas?:

I noticed that I was repeatedly falling and that my leg would give out without any warning.  I also recall that I was unable to raise my right arm unless I had assistance.

¿Tiene otros familiares que padezcan LGMD?

So far, no one in my family has muscular dystrophy but I plan to have my parents tested to see if they are carriers.

¿Cuáles crees que son los mayores retos de vivir con LGMD?:

One of the greatest challenges is always having to plan ahead – if going out with friends or family to make sure the place is handicapped accessible.  Every day it also takes me longer to get dressed in the morning.

¿Cuál es su mayor logro?:

Coming to the fact that I have LGMD and still trying to figure out which form of LGMD.  And learning to embrace it.

¿Cómo le ha influido la LGMD para convertirse en la persona que es hoy?

I feel LGMD has made me an unique individual helped me to bring awareness of the disease to others that don’t know much about it.  Having LGMD has helped me to become stronger and more independent.  I know that having LGMD is a part of me, I am human and still have my days just like anyone else.  I am a strong and proud woman with LGMD.

¿Qué quiere que el mundo sepa sobre la LGMD?:

LGMD is something that currently has no cure.  It is something that won’t go away.  Physical therapy and aquatic therapy help manage the disease.  Even with LGMD, we are still strong and can live a normal life just like anyone else.

Si su LGMD pudiera "curarse" mañana, ¿qué sería lo primero que desearía hacer?:

If I could be cured tomorrow, I would want to run a marathon, run up and down the stairs, and take a big vacation somewhere to celebrate!

 

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