07/11/2020 – 07/12/2020 all-day

***Registration is now open***

Please join us for a virtual conference on July 11 and 12, 2020 that will include study updates as well as clinical and research Q&A sessions.

See the full agenda  on the Iowa Wellstone website: https://medicine.uiowa.edu/mdsrc/news-events.  

Note that morning sessions are intended for a general audience; other sessions are specific to teenagers and caregivers.

Written consent will be required for the teen session.


REGISTER USING THIS LINK: https://docs.google.com/forms/d/e/1FAIpQLSejd0I2KAhsjK_TDRX80eebRDR2mmfC10EIayOV7lrIQ65mfg/viewform?usp=sf_link

**You will need to provide an email address to obtain a participant ID for the conference. Members of the same household may register for one participant ID if they will use the same device to access the conference.


*If you are new to the group, or want a refresher on the dystroglycanopathies, please view Dr Mathews’ talk ‘Introduction to the Dystroglycanopathies’ here: https://uicapture.hosted.panopto.com/Panopto/Pages/Viewer.aspx?id=52b40f7a-bebd-4612-b408-c9d04311470c

You will need to access zoom to attend the conference. If you are not familiar with zoom, refer to this QuickStart guide:



Questions? Contact Carrie Stephan 319-356-2673; carrie-stephan@uiowa.edu


2020 Dystroglycanopathy Patient and Family Conference
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