When:
07/18/2020 @ 11:00 am – 4:00 pm
2020-07-18T11:00:00-04:00
2020-07-18T16:00:00-04:00
Where:
Virtual
Cost:
Free
Contact:
MDA
1-833-ASK-MDA1 (1-833-275-6321)

REGISTER BY JULY 14TH IF INTERESTED IN ATTENDING

A day-long symposium bringing together people living with one of the many types of LGMD and their family members and friends to learn about the current “state of the art” in LGMD research and treatment. Families will also have the opportunity to network and build relationships with other LGMD families, as well as hear from top experts in the LGMD field.

Event Chair: Dr. Colin Quinn, Assistant Professor of Clinical Neurology, University of Pennsylvania

Agenda

  • MDA Mission Spotlight (10:00am CT)
    • Nicole Petrouski, Muscular Dystrophy Association
  • Keynote Presentation (10:10am CT))
    • Dr. Colin Quinn, Assistant Professor of Clinical Neurology, University of Pennsylvania
  • Genetics & LGMD (11:10 am CT)
    • Dr. Matthew Wicklund, Neurologist, University of Colorado
  • Exercise & LGMD (12:10pm CT)
    • Mary Kingston, PT, DPT, NCS, CSCS, UPMC Centers for Rehab Services
  • Research and LGMD (1:10pm CT)
    • Dr. Nick Johnson, Associate professor of Neurology and Human and Molecular Genetics and vice chair of research in Neurology, Virginia Commonwealth University
  • Bone Health & LGMD (2:10pm CT)
    • Dr. Sankar Bandyopadhyay, Neurologist, Penn State Hershey

 

For questions reach out to: mdaengage@mdausa.org | 1-833-ASK-MDA1 (1-833-275-6321)

2020 MDA Engage Limb-Girdle Muscular Dystrophy Symposium
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