Upcoming LGMD Events


Beyond Labels & Limitation’s

Annual Golf Outing

September 15, 2018

Allentown Municipal Golf Course, Allentown, PA

The tournament will be a Four Person Scramble. Shotgun Start at 8:00 am, check-in 7:00 am. $90 per golfer (includes Green Fees, Cart, Lunch, Beverage and Gift Bag)

Deadline to Register: September 1, 2018

* * * Download Registration Flyer for more information * * *


8th Annual Casino Night for CureLGMD2i

Saturday, October 13 

6 PM11 PM EDT

Eden Resort & Suites

222 Eden Road, Lancaster, Pennsylvania 17601

For more information, please contact Kelly Brazzo at kbrazzo@yahoo.com or message the Cure LGMD2i Foundation through their Facebook page  https://www.facebook.com/CureLGMD2i 


The University of Kansas Medical Center

Limb Girdle Muscular Dystrophy Patient Day

Saturday, October 20, 2018 from 10 a.m. – 3 p.m.

KU Clinical Research Center

4350 Shawnee Mission Parkway

Fairway, KS 66205

  • Lunch will be provided – RSVP by 10/1/2018 (Space is limited)
  • RSVP to Kiley Higgs   Email:  ksims2@kumc.edu Phone:  913-945-9922

Hosted by Jeffrey Statland, MD, KU Research Team and the Jain Foundation


The Speak Foundation 11th Annual Conference for Individuals with Neuromuscular Disorders & their Loved Ones

 

Friday, June 28th – Sunday, June 30th, 2019

~ Watch for further details regarding registration and hotel accommodations ~

CONFERENCE LOCATION:

Westin Buckhead Atlanta | 3391 Peachtree Rd NE, Atlanta, GA 30326 USA
Phone: 404-365-0065 | Reservations: 800-253-1397

Feel free to email Jessica@thespeakfoundation.com or thespeakfoundation@yahoo.com with any questions. 


National Limb Girdle Muscular Dystrophy Conference

Friday, August 30—Sunday, September 1, 2019

Chicago, Illinois (USA)

~ Watch for further details regarding location, registration and hotel accommodations ~

A conference dedicated to bringing every LGMD patient into an active role seeking to find cures and treatments alongside doctors, biotech, and pharmaceutical companies.

For more information:  www.NationalLimbGirdleMuscularDystrophyConference.com




* * If you have an LGMD related event that you would like added to our calendar of events, please send us an e-mail with all of the event details.

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