1th Annual Dancing For A Cure
Organized by: Beyond Labels & Limitations, Inc.
Where: Fearless Fire Company, 1221 South Front Street, Allentown PA
When: Saturday, April 21, 2018
Time: Doors open at 6pm
Tickets: $10per/person in advance/15$ at the door (message for tickets)
Music: “Flirtin with THE MOB”
Sponsor: “Houser Plessl Wealth Management Group”
Benefits: Research for Limb Girdle Muscular Dystrophy 2A
Join Muscular Dystrophy UK for an Information Day with sessions tailored specifically for anyone living with LGMD. It’s free and you’ll hear about progress in research and clinical developments relating to LGMD. Equally importantly, you’ll get to meet others living with the condition, and you’ll even get lunch!
Date: Saturday 6 April
Location: Crown Plaza, Newcastle – Stephenson Quarter, Hawthorn Square, Forth Street, Newcastle Upon Tyne, NE1 3SA
Leading researchers and clinicians will be there to tell you about the latest research and healthcare. There will also be a range of exciting condition specific workshops around independent living.
You’ll get to meet others living with muscle-wasting conditions and enjoy a day filled with practical advice and information about improving your quality of life.
The Muscular Dystrophy UK advocacy team will also be on hand to answer any questions you may have about getting the services and equipment you are entitled to.
The booking for this event will be on a first-come, first served basis, to reserve your free place please visit https://www.musculardystrophyuk.org/events/research-and-information-day/
If you have any questions about the day please get in touch with us on 08006526352 or email email@example.com
Lunch will be provided but please be aware there are no crèche facilities on the day.
There is no cost to attend the event, however, registration is required.
Register by Friday, May 10, 2019, online at https://mda.secure.force.com/eventRegistration/?id=7012L000001E6fT
Registration & Breakfast: 8:00am-8:45am
Event: 9:00am-4:00pm (lunch included)
Social Hour: 4:00pm-5:00pm
- Keynote Presentation – Clinical Trials in LGMD
- Nicholas Johnson, MD, MS-CI, Virginia Commonwealth University
- Drug Development Round Table
- Moderator – Scott Vota, DO, Virginia Commonwealth University
- MDA Spotlight
- Sarah Arndt and Niki Benfield
Join us for The Dystroglycanopathies: 2019 Patient & Family Conference!
To register for the conference, please click here to download the registration form. Completed forms should be sent to the Center for Conferences via email (firstname.lastname@example.org), fax (319-335-4039), or mail (UI Center for Conferences, 250 CEF, Iowa City, IA 52242). You may also call the Center for Conferences directly to register over the phone at 319-335-4141.
The deadline to register is May 31, 2019.
Marriott Hotel & Conference Center
300 E. 9th Street
Coralville, IA 52241
Hotel rooms are available at a reduced rate ($115 per night + taxes and fees) at the Marriott for conference attendees. To reserve a room at the conference rate, please call the Marriott Hotel at 319-688-4000 and reference the “UI Wellstone Muscular Dystrophy Conference”. You may also book your room online by clicking here. You must make your room reservations by May 31st in order to receive the conference rate.