Oct
    15
    Tue
    2019
    MDA’s Public Policy and Advocacy Conference @ Grand Hyatt Washington
    Oct 15 @ 4:30 pm – Oct 17 @ 5:30 pm
    Nov
    8
    Fri
    2019
    LGMD Patient Event @ Wong Kerlee International Conference Center
    Nov 8 @ 9:30 am – 3:00 pm

    LOMA LINDA UNIVERSITY AND THE JAIN FOUNDATION

    are hosting the

    LGMD PATIENT EVENT

    RSVP by 10/15/2019 via email to patients@jain-foundation.org

    Vegetarian lunch included – please note in RSVP if you require gluten free or vegan

    Learn about:

    • Advancements and innovative technology in LGMD
    • Current and future directions for drug development
    • Orthotics, stretching and exercise
    • Diagnostics

    Ask Questions and connect with other patients

    Nov
    29
    Fri
    2019
    2nd International Congress on LGMD due to Calpain 3 Deficiency 3 @ IRCCS E. Medea
    Nov 29 @ 1:30 pm – Nov 30 @ 5:00 pm

    The event is open to healthcare professionals, patients and their families.

    Pre-registration is required.  Space is limited.

    Jul
    10
    Fri
    2020
    12th Annual Speak Atlanta Conference @ Westin Buckhead Atlanta
    Jul 10 @ 6:30 pm – Jul 12 @ 9:00 pm

    Registration is officially OPEN for our 12th Annual Conference for Individuals with Neuromuscular Disorders and their Loved Ones in Atlanta, Georgia, July 10-12, Westin Buckhead Atlanta hotel. Ticket and hotel reservation details below! Those with ANY type of neuromuscular disorder (NMD) are invited to attend. Our Speak Atlanta conference differs from our National LGMD conference in several ways, so please be sure to read more details about that on our attached flyer before registering. Our theme this year is Mind + Body and will focus on overall wellness and how to live well with a NMD. We plan to hear from professionals on such topics as nutrition, physical therapy, psychological wellness/coping, and more! Our attendance will cap at 50 attendees this year to allow us all to connect personally, so if you know for sure that you would like to attend, don’t hesitate! Buy your ticket and reserve your room now/early! We can’t wait to see you in Atlanta!

    TO ATTEND:

    1. Register to attend by purchasing your Eventbrite ticket(s) for yourself and each guest you might be bringing with you! We always welcome and encourage loved ones and caregivers to come and participate (we have a session specifically for you to connect with each other on Saturday). Follow the link below and click on “Speak Foundation Atlanta Conference” to purchase tickets.  https://www.eventbrite.com/e/speak-foundation-atlanta-conference-tickets-90553216107

    2. Reserve your reduced rate room ($139/night + taxes/fees) at the Westin Buckhead Atlanta hotel. During the online reservation process, you will see a space for “Other information.” If you require an ADA tub room or a roll-in shower room, for example, please check the box that reads “Accessible” and specify your need. https://book.passkey.com/gt/217771934?gtid=20f42fbac2c9c9e7722f7403156ea062&fbclid=IwAR2fc_W2ASgTLdUwjq4mC99olr8bXvzZpjLYDaVBlgmbX4jrIdsud02jFcI

    Jul
    11
    Sat
    2020
    The Dystroglycanopathies: 2020 Patient and Family Conference @ Coralville Marriot Hotel & Conference Center
    Jul 11 all-day

    Join us for The Dystroglycanopathies: 2020 Patient & Family Conference!

    REGISTRATION
    To register for the conference, please click here to download the registration form. Completed forms should be sent to the Center for Conferences via email (conferences@uiowa.edu), fax (319-335-4039), or mail (UI Center for Conferences, 250 CEF, Iowa City, IA 52242). You may also call the Center for Conferences directly to register over the phone at 319-335-4141.

    LOCATION
    Marriott Hotel & Conference Center
    300 E. 9th Street
    Coralville, IA 52241

    ROOM BLOCK
    Hotel rooms are available at a reduced rate ($115 per night + taxes and fees) at the Marriott for conference attendees. To reserve a room at the conference rate, please call the Marriott Hotel at 319-688-4000 and reference the “UI Wellstone Muscular Dystrophy Conference”.

     

     

    Sep
    30
    Wed
    2020
    6th Annual LGMD Awareness Day
    Sep 30 all-day
    Oct
    24
    Sat
    2020
    9th Annual Casino Night for CureLGMD2i @ Eden Resort & Suites
    Oct 24 @ 6:00 pm – 11:00 pm

    We will be hosting our 10th Annual Casino Night event on at the Eden Resort in Lancaster, PA on October 5th and our 3rd Annual Golf Outing at Crossgates in Millersville on October 24th, 2020. It would be great if you could attend one or both of these great events! Please consider offering a gift certificate, gift basket, or prize to be auctioned. We are also looking for corporate sponsors of various levels. In turn, your company will be recognized in our e-newsletter, on our website, and at the event. We are a 501(c)(3) approved public charity and, as such, your donation is tax-deductible. We appreciate any support that you may have to offer. To find out more about our cause, please visit our website at: www.curelgmd2i.com.

    “If you prefer to mail in your registration and pay by check – click on this link for the printable registration form:

    Casino_Golf Registration 2019.pdf

    Thank you so much for your interest and support!

    Keith & Kelly Brazzo,
    Co-Founders of CureLGMD2i

    590 Centerville Road #340

    Lancaster, PA 17601

    (717) 405-7518
    Tax ID#: 80-06804

    Nov
    6
    Fri
    2020
    MDC Neuromuscular Conference 2020 @ Sheraton Centre Toronto Hotel
    Nov 6 – Nov 8 all-day
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