May
    18
    Sat
    2019
    2019 MDA Engage Limb-Girdle Symposium @ Hilton Garden Inn Richmond Innsbrook
    May 18 @ 8:00 am – 5:00 pm

    There is no cost to attend the event, however, registration is required.
    Register by Friday, May 10, 2019, online at https://mda.secure.force.com/eventRegistration/?id=7012L000001E6fT

    Registration & Breakfast: 8:00am-8:45am
    Event: 9:00am-4:00pm (lunch included)
    Social Hour: 4:00pm-5:00pm

    • Keynote Presentation – Clinical Trials in LGMD
      • Nicholas Johnson, MD, MS-CI, Virginia Commonwealth University
    • Drug Development Round Table
      • Moderator – Scott Vota, DO, Virginia Commonwealth University
    • MDA Spotlight
      • Sarah Arndt and Niki Benfield

    Learn more at https://www.mda.org/care/mda-engage/disease-symposia/limb-girdle-symposium-2019

    Jun
    22
    Sat
    2019
    The Dystroglycanopathies: 2019 Patient and Family Conference @ Coralville Marriot Hotel & Conference Center
    Jun 22 all-day

    Join us for The Dystroglycanopathies: 2019 Patient & Family Conference!

    REGISTRATION
    To register for the conference, please click here to download the registration form. Completed forms should be sent to the Center for Conferences via email (conferences@uiowa.edu), fax (319-335-4039), or mail (UI Center for Conferences, 250 CEF, Iowa City, IA 52242). You may also call the Center for Conferences directly to register over the phone at 319-335-4141.
    The deadline to register is May 31, 2019. 

    LOCATION
    Marriott Hotel & Conference Center
    300 E. 9th Street
    Coralville, IA 52241

    ROOM BLOCK
    Hotel rooms are available at a reduced rate ($115 per night + taxes and fees) at the Marriott for conference attendees. To reserve a room at the conference rate, please call the Marriott Hotel at 319-688-4000 and reference the “UI Wellstone Muscular Dystrophy Conference”. You may also book your room online by clicking hereYou must make your room reservations by May 31st in order to receive the conference rate.

     

     

    Jun
    28
    Fri
    2019
    The Speak Foundation 11th Annual Conference for Individuals with Neuromuscular Disorders & their Loved Ones @ Westin Buckhead Atlanta
    Jun 28 @ 4:00 pm – Jun 30 @ 2:00 pm
    Aug
    30
    Fri
    2019
    National LGMD Conference @ Hyatt Regency Chicago
    Aug 30 @ 2:00 pm – Sep 2 @ 6:00 pm
    Sep
    30
    Mon
    2019
    5th Annual LGMD Awareness Day @ Worldwide
    Sep 30 all-day
    Oct
    5
    Sat
    2019
    9th Annual Casino Night for CureLGMD2i @ Eden Resort & Suites
    Oct 5 @ 6:00 pm – 11:00 pm

    We will be hosting our 9th Annual Casino Night event on at the Eden Resort in Lancaster, PA on October 5th and our 3rd Annual Golf Outing at Crossgates in Millersville on October 12th, 2019. It would be great if you could attend one or both of these great events! Please consider offering a gift certificate, gift basket, or prize to be auctioned. We are also looking for corporate sponsors of various levels. In turn, your company will be recognized in our e-newsletter, on our website, and at the event. We are a 501(c)(3) approved public charity and, as such, your donation is tax-deductible. We appreciate any support that you may have to offer. To find out more about our cause, please visit our website at: www.curelgmd2i.com.

    “If you prefer to mail in your registration and pay by check – click on this link for the printable registration form:

    Casino_Golf Registration 2019.pdf

    Thank you so much for your interest and support!

    Keith & Kelly Brazzo,
    Co-Founders of CureLGMD2i

    590 Centerville Road #340

    Lancaster, PA 17601

    (717) 405-7518
    Tax ID#: 80-06804

    Oct
    12
    Sat
    2019
    3rd Annual Golf Outing for CureLGMD2i @ Crossgates Golf Club
    Oct 12 @ 9:00 am – 11:45 pm

    We will be hosting our 9th Annual Casino Night event on at the Eden Resort in Lancaster, PA on October 5th and our 3rd Annual Golf Outing at Crossgates in Millersville on October 12th, 2019. It would be great if you could attend one or both of these great events! Please consider offering a gift certificate, gift basket, or prize to be auctioned. We are also looking for corporate sponsors of various levels. In turn, your company will be recognized in our e-newsletter, on our website, and at the event. We are a 501(c)(3) approved public charity and, as such, your donation is tax-deductible. We appreciate any support that you may have to offer. To find out more about our cause, please visit our website at: www.curelgmd2i.com.

    “If you prefer to mail in your registration and pay by check – click on this link for the printable registration form:

    Casino_Golf Registration 2019.pdf

    Thank you so much for your interest and support!

    Keith & Kelly Brazzo,
    Co-Founders of CureLGMD2i

    590 Centerville Road #340

    Lancaster, PA 17601

    (717) 405-7518
    Tax ID#: 80-0680447

    Oct
    15
    Tue
    2019
    MDA’s Public Policy and Advocacy Conference @ Grand Hyatt Washington
    Oct 15 @ 4:30 pm – Oct 17 @ 5:30 pm
    Nov
    8
    Fri
    2019
    LGMD Patient Event @ Wong Kerlee International Conference Center
    Nov 8 @ 9:30 am – 3:00 pm

    LOMA LINDA UNIVERSITY AND THE JAIN FOUNDATION

    are hosting the

    LGMD PATIENT EVENT

    RSVP by 10/15/2019 via email to patients@jain-foundation.org

    Vegetarian lunch included – please note in RSVP if you require gluten free or vegan

    Learn about:

    • Advancements and innovative technology in LGMD
    • Current and future directions for drug development
    • Orthotics, stretching and exercise
    • Diagnostics

    Ask Questions and connect with other patients

    Nov
    29
    Fri
    2019
    2nd International Congress on LGMD due to Calpain 3 Deficiency 3 @ IRCCS E. Medea
    Nov 29 @ 1:30 pm – Nov 30 @ 5:00 pm

    The event is open to healthcare professionals, patients and their families.

    Pre-registration is required.  Space is limited.

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