May
18
Sat
2019
2019 MDA Engage Limb-Girdle Symposium @ Hilton Garden Inn Richmond Innsbrook
May 18 @ 8:00 am – 5:00 pm

There is no cost to attend the event, however, registration is required.
Register by Friday, May 10, 2019, online at https://mda.secure.force.com/eventRegistration/?id=7012L000001E6fT

Registration & Breakfast: 8:00am-8:45am
Event: 9:00am-4:00pm (lunch included)
Social Hour: 4:00pm-5:00pm

  • Keynote Presentation – Clinical Trials in LGMD
    • Nicholas Johnson, MD, MS-CI, Virginia Commonwealth University
  • Drug Development Round Table
    • Moderator – Scott Vota, DO, Virginia Commonwealth University
  • MDA Spotlight
    • Sarah Arndt and Niki Benfield

Learn more at https://www.mda.org/care/mda-engage/disease-symposia/limb-girdle-symposium-2019

Jun
22
Sat
2019
The Dystroglycanopathies: 2019 Patient and Family Conference @ Coralville Marriot Hotel & Conference Center
Jun 22 all-day

Join us for The Dystroglycanopathies: 2019 Patient & Family Conference!

REGISTRATION
To register for the conference, please click here to download the registration form. Completed forms should be sent to the Center for Conferences via email (conferences@uiowa.edu), fax (319-335-4039), or mail (UI Center for Conferences, 250 CEF, Iowa City, IA 52242). You may also call the Center for Conferences directly to register over the phone at 319-335-4141.
The deadline to register is May 31, 2019. 

LOCATION
Marriott Hotel & Conference Center
300 E. 9th Street
Coralville, IA 52241

ROOM BLOCK
Hotel rooms are available at a reduced rate ($115 per night + taxes and fees) at the Marriott for conference attendees. To reserve a room at the conference rate, please call the Marriott Hotel at 319-688-4000 and reference the “UI Wellstone Muscular Dystrophy Conference”. You may also book your room online by clicking hereYou must make your room reservations by May 31st in order to receive the conference rate.

 

 

Jun
28
Fri
2019
The Speak Foundation 11th Annual Conference for Individuals with Neuromuscular Disorders & their Loved Ones @ Westin Buckhead Atlanta
Jun 28 @ 4:00 pm – Jun 30 @ 2:00 pm
Aug
30
Fri
2019
National LGMD Conference @ Hyatt Regency Chicago
Aug 30 @ 2:00 pm – Sep 2 @ 6:00 pm
Sep
30
Mon
2019
5th Annual LGMD Awareness Day
Sep 30 all-day
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