Jun
    28
    Fri
    2019
    The Speak Foundation 11th Annual Conference for Individuals with Neuromuscular Disorders & their Loved Ones @ Westin Buckhead Atlanta
    Jun 28 @ 4:00 pm – Jun 30 @ 2:00 pm
    Aug
    30
    Fri
    2019
    National LGMD Conference @ Hyatt Regency Chicago
    Aug 30 @ 2:00 pm – Sep 2 @ 6:00 pm
    Sep
    30
    Mon
    2019
    5th Annual LGMD Awareness Day @ Worldwide
    Sep 30 all-day
    Oct
    5
    Sat
    2019
    9th Annual Casino Night for CureLGMD2i @ Eden Resort & Suites
    Oct 5 @ 6:00 pm – 11:00 pm

    We will be hosting our 9th Annual Casino Night event on at the Eden Resort in Lancaster, PA on October 5th and our 3rd Annual Golf Outing at Crossgates in Millersville on October 12th, 2019. It would be great if you could attend one or both of these great events! Please consider offering a gift certificate, gift basket, or prize to be auctioned. We are also looking for corporate sponsors of various levels. In turn, your company will be recognized in our e-newsletter, on our website, and at the event. We are a 501(c)(3) approved public charity and, as such, your donation is tax-deductible. We appreciate any support that you may have to offer. To find out more about our cause, please visit our website at: www.curelgmd2i.com.

    “If you prefer to mail in your registration and pay by check – click on this link for the printable registration form:

    Casino_Golf Registration 2019.pdf

    Thank you so much for your interest and support!

    Keith & Kelly Brazzo,
    Co-Founders of CureLGMD2i

    590 Centerville Road #340

    Lancaster, PA 17601

    (717) 405-7518
    Tax ID#: 80-06804

    Oct
    12
    Sat
    2019
    3rd Annual Golf Outing for CureLGMD2i @ Crossgates Golf Club
    Oct 12 @ 9:00 am – 11:45 pm

    We will be hosting our 9th Annual Casino Night event on at the Eden Resort in Lancaster, PA on October 5th and our 3rd Annual Golf Outing at Crossgates in Millersville on October 12th, 2019. It would be great if you could attend one or both of these great events! Please consider offering a gift certificate, gift basket, or prize to be auctioned. We are also looking for corporate sponsors of various levels. In turn, your company will be recognized in our e-newsletter, on our website, and at the event. We are a 501(c)(3) approved public charity and, as such, your donation is tax-deductible. We appreciate any support that you may have to offer. To find out more about our cause, please visit our website at: www.curelgmd2i.com.

    “If you prefer to mail in your registration and pay by check – click on this link for the printable registration form:

    Casino_Golf Registration 2019.pdf

    Thank you so much for your interest and support!

    Keith & Kelly Brazzo,
    Co-Founders of CureLGMD2i

    590 Centerville Road #340

    Lancaster, PA 17601

    (717) 405-7518
    Tax ID#: 80-0680447

    Oct
    15
    Tue
    2019
    MDA’s Public Policy and Advocacy Conference @ Grand Hyatt Washington
    Oct 15 @ 4:30 pm – Oct 17 @ 5:30 pm
    Nov
    8
    Fri
    2019
    LGMD Patient Event @ Wong Kerlee International Conference Center
    Nov 8 @ 9:30 am – 3:00 pm

    LOMA LINDA UNIVERSITY AND THE JAIN FOUNDATION

    are hosting the

    LGMD PATIENT EVENT

    RSVP by 10/15/2019 via email to patients@jain-foundation.org

    Vegetarian lunch included – please note in RSVP if you require gluten free or vegan

    Learn about:

    • Advancements and innovative technology in LGMD
    • Current and future directions for drug development
    • Orthotics, stretching and exercise
    • Diagnostics

    Ask Questions and connect with other patients

    Nov
    29
    Fri
    2019
    2nd International Congress on LGMD due to Calpain 3 Deficiency 3 @ IRCCS E. Medea
    Nov 29 @ 1:30 pm – Nov 30 @ 5:00 pm

    The event is open to healthcare professionals, patients and their families.

    Pre-registration is required.  Space is limited.

    Jul
    11
    Sat
    2020
    The Dystroglycanopathies: 2020 Patient and Family Conference @ Coralville Marriot Hotel & Conference Center
    Jul 11 all-day

    Join us for The Dystroglycanopathies: 2020 Patient & Family Conference!

    REGISTRATION
    – more information coming soon

    LOCATION
    Marriott Hotel & Conference Center
    300 E. 9th Street
    Coralville, IA 52241

    ROOM BLOCK
    Hotel rooms are available at a reduced rate (rate to be announced) at the Marriott for conference attendees. To reserve a room at the conference rate, please call the Marriott Hotel at 319-688-4000 and reference the “UI Wellstone Muscular Dystrophy Conference”. You may also book your room online by clicking hereYou must make your room reservations by May 31st in order to receive the conference rate.

     

     

    Jul
    18
    Sat
    2020
    2020 MDA Engage Limb-Girdle Muscular Dystrophy Symposium @ The Hershey Lodge
    Jul 18 all-day
    REGISTER BY JULY 14TH IF INTERESTED IN ATTENDING
    A day-long symposium bringing together people living with one of the many types of LGMD and their family members and friends to learn about the current “state of the art” in LGMD research and treatment. Families will also have the opportunity to network and build relationships with other LGMD families, as well as hear from top experts in the LGMD field.

    Event Chair: Dr. Colin Quinn, University of Pennsylvania

    Agenda

    • Keynote Presentation
      • Dr. Colin Quinn, University of Pennsylvania
    • Genetics & LGMD
      • Dr. Matthew Wicklund, University of Colorado
    • Exercise & LGMD
      • Vicky Kern, PT, Penn State Hershey
    • Bone Health & LGMD
      • Dr. Sankar Bandyopadhyay, Penn State Hershey
    • Drug Development Roundtable
    • MDA Mission Spotlight

    For questions reach out to: mdaengage@mdausa.org | 1-833-ASK-MDA1 (1-833-275-6321)

    Sep
    30
    Wed
    2020
    6th Annual LGMD Awareness Day
    Sep 30 all-day
    Oct
    24
    Sat
    2020
    10th Annual Casino Night for CureLGMD2i @ Eden Resort & Suites
    Oct 24 @ 6:00 pm – 11:00 pm

    We will be hosting our 10th Annual Casino Night event on at the Eden Resort in Lancaster, PA on October 24th and our 3rd Annual Golf Outing at Crossgates in Millersville on October 12th, 2019. It would be great if you could attend one or both of these great events! Please consider offering a gift certificate, gift basket, or prize to be auctioned. We are also looking for corporate sponsors of various levels. In turn, your company will be recognized in our e-newsletter, on our website, and at the event. We are a 501(c)(3) approved public charity and, as such, your donation is tax-deductible. We appreciate any support that you may have to offer. To find out more about our cause, please visit our website at: www.curelgmd2i.com.

    “If you prefer to mail in your registration and pay by check – click on this link for the printable registration form:

    Casino_Golf Registration 2019.pdf

    Thank you so much for your interest and support!

    Keith & Kelly Brazzo,
    Co-Founders of CureLGMD2i

    590 Centerville Road #340

    Lancaster, PA 17601

    (717) 405-7518
    Tax ID#: 80-06804

    Nov
    6
    Fri
    2020
    MDC Neuromuscular Conference 2020 @ Sheraton Centre Toronto Hotel
    Nov 6 – Nov 8 all-day
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