This year, on September 24, as we approach the 5th annual LGMD Awareness Day, we are planning to have a delegation of individuals on Capitol Hill to meet with key elected officials. We want to increase their awareness of LGMD and also talk about some important issues. Our hope is that for 2020 we will plan and execute a bigger event on the Hill and continue to build awareness of our issues with our elected officials. Ralph Yaniz is Director of this effort.
This is a project of 501(c)(3) non-profit organization The Speak Foundation.