Apr
6
Sat
2019
Info Day – MDUK @ Crown Plaza, Newcastle – Stephenson Quarter
Apr 6 all-day

Join Muscular Dystrophy UK for an Information Day with sessions tailored specifically for anyone living with LGMD. It’s free and you’ll hear about progress in research and clinical developments relating to LGMD. Equally importantly, you’ll get to meet others living with the condition, and you’ll even get lunch!

Date: Saturday 6 April

Time: TBC

Location: Crown Plaza, Newcastle – Stephenson Quarter, Hawthorn Square, Forth Street, Newcastle Upon Tyne, NE1 3SA

Leading researchers and clinicians will be there to tell you about the latest research and healthcare. There will also be a range of exciting condition specific workshops around independent living.

You’ll get to meet others living with muscle-wasting conditions and enjoy a day filled with practical advice and information about improving your quality of life.

The Muscular Dystrophy UK  advocacy team will also be on hand to answer any questions you may have about getting the services and equipment you are entitled to.

The booking for this event will be on a first-come, first served basis, to reserve your free place please visit https://www.musculardystrophyuk.org/events/research-and-information-day/ 

If you have any questions about the day please get in touch with us on 08006526352 or email infoday@musculardystrophyuk.org

Lunch will be provided but please be aware there are no crèche facilities on the day.

 

May
18
Sat
2019
2019 MDA Engage Limb-Girdle Symposium @ Hilton Garden Inn Richmond Innsbrook
May 18 @ 8:00 am – 5:00 pm

There is no cost to attend the event, however, registration is required.
Register by Friday, May 10, 2019, online at https://mda.secure.force.com/eventRegistration/?id=7012L000001E6fT

Registration & Breakfast: 8:00am-8:45am
Event: 9:00am-4:00pm (lunch included)
Social Hour: 4:00pm-5:00pm

  • Keynote Presentation – Clinical Trials in LGMD
    • Nicholas Johnson, MD, MS-CI, Virginia Commonwealth University
  • Drug Development Round Table
    • Moderator – Scott Vota, DO, Virginia Commonwealth University
  • MDA Spotlight
    • Sarah Arndt and Niki Benfield

Learn more at https://www.mda.org/care/mda-engage/disease-symposia/limb-girdle-symposium-2019

Jun
22
Sat
2019
The Dystroglycanopathies: 2019 Patient and Family Conference @ Coralville Marriot Hotel & Conference Center
Jun 22 all-day

Join us for The Dystroglycanopathies: 2019 Patient & Family Conference!

REGISTRATION
To register for the conference, please click here to download the registration form. Completed forms should be sent to the Center for Conferences via email (conferences@uiowa.edu), fax (319-335-4039), or mail (UI Center for Conferences, 250 CEF, Iowa City, IA 52242). You may also call the Center for Conferences directly to register over the phone at 319-335-4141.
The deadline to register is May 31, 2019. 

LOCATION
Marriott Hotel & Conference Center
300 E. 9th Street
Coralville, IA 52241

ROOM BLOCK
Hotel rooms are available at a reduced rate ($115 per night + taxes and fees) at the Marriott for conference attendees. To reserve a room at the conference rate, please call the Marriott Hotel at 319-688-4000 and reference the “UI Wellstone Muscular Dystrophy Conference”. You may also book your room online by clicking hereYou must make your room reservations by May 31st in order to receive the conference rate.

 

 

Jun
28
Fri
2019
The Speak Foundation 11th Annual Conference for Individuals with Neuromuscular Disorders & their Loved Ones @ Westin Buckhead Atlanta
Jun 28 @ 4:00 pm – Jun 30 @ 2:00 pm
Aug
30
Fri
2019
National LGMD Conference @ Hyatt Regency Chicago
Aug 30 @ 2:00 pm – Sep 2 @ 6:00 pm
Sep
30
Mon
2019
5th Annual LGMD Awareness Day
Sep 30 all-day
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