Apr
6
Sat
2019
Info Day – MDUK @ Crown Plaza, Newcastle – Stephenson Quarter
Apr 6 all-day

Join Muscular Dystrophy UK for an Information Day with sessions tailored specifically for anyone living with LGMD. It’s free and you’ll hear about progress in research and clinical developments relating to LGMD. Equally importantly, you’ll get to meet others living with the condition, and you’ll even get lunch!

Date: Saturday 6 April

Time: TBC

Location: Crown Plaza, Newcastle – Stephenson Quarter, Hawthorn Square, Forth Street, Newcastle Upon Tyne, NE1 3SA

Leading researchers and clinicians will be there to tell you about the latest research and healthcare. There will also be a range of exciting condition specific workshops around independent living.

You’ll get to meet others living with muscle-wasting conditions and enjoy a day filled with practical advice and information about improving your quality of life.

The Muscular Dystrophy UK  advocacy team will also be on hand to answer any questions you may have about getting the services and equipment you are entitled to.

The booking for this event will be on a first-come, first served basis, to reserve your free place please visit https://www.musculardystrophyuk.org/events/research-and-information-day/ 

If you have any questions about the day please get in touch with us on 08006526352 or email infoday@musculardystrophyuk.org

Lunch will be provided but please be aware there are no crèche facilities on the day.

 

Jun
22
Sat
2019
The Dystroglycanopathies: 2019 Patient and Family Conference @ Coralville Marriot Hotel & Conference Center
Jun 22 all-day
Jun
28
Fri
2019
The Speak Foundation 11th Annual Conference for Individuals with Neuromuscular Disorders & their Loved Ones @ Westin Buckhead Atlanta
Jun 28 @ 4:00 pm – Jun 30 @ 2:00 pm
Aug
30
Fri
2019
National LGMD Conference @ Hyatt Regency Chicago
Aug 30 @ 2:00 pm – Sep 2 @ 6:00 pm
Sep
30
Mon
2019
5th Annual LGMD Awareness Day
Sep 30 all-day
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