LGMD "Spotlight Interview" (en anglais)

Nom:  Keisha  L'âge: 31 ans

Pays: États-Unis

LGMD Sous-type : Unknown

 

À quel âge avez-vous été diagnostiqué ?:

I was diagnosed about 5 years ago at the age of 25-26.

Quels ont été vos premiers symptômes ?:

I noticed that I was repeatedly falling and that my leg would give out without any warning.  I also recall that I was unable to raise my right arm unless I had assistance.

Avez-vous d'autres membres de votre famille atteints de LGMD ?

So far, no one in my family has muscular dystrophy but I plan to have my parents tested to see if they are carriers.

Quels sont, selon vous, les plus grands défis à relever pour vivre avec le LGMD ?:

One of the greatest challenges is always having to plan ahead – if going out with friends or family to make sure the place is handicapped accessible.  Every day it also takes me longer to get dressed in the morning.

Quelle est votre plus grande réussite ?:

Coming to the fact that I have LGMD and still trying to figure out which form of LGMD.  And learning to embrace it.

Comment le LGMD vous a-t-il influencé pour que vous deveniez la personne que vous êtes aujourd'hui ?

I feel LGMD has made me an unique individual helped me to bring awareness of the disease to others that don’t know much about it.  Having LGMD has helped me to become stronger and more independent.  I know that having LGMD is a part of me, I am human and still have my days just like anyone else.  I am a strong and proud woman with LGMD.

Que voulez-vous que le monde sache sur le LGMD ?:

LGMD is something that currently has no cure.  It is something that won’t go away.  Physical therapy and aquatic therapy help manage the disease.  Even with LGMD, we are still strong and can live a normal life just like anyone else.

Si votre LGMD pouvait être "guérie" demain, quelle serait la première chose que vous souhaiteriez faire ?:

If I could be cured tomorrow, I would want to run a marathon, run up and down the stairs, and take a big vacation somewhere to celebrate!

 

Pour lire d'autres "LGMD Spotlight Interviews" ou pour vous porter volontaire en vue d'une prochaine interview, veuillez consulter notre site web à l'adresse suivante : https://www.lgmd-info.org/spotlight-interviews