09/22/2015: 

名前: Bình  年齢: 30

国 Vietnam

LGMDサブタイプ: LGMD2A / Calpainopathy

 

何歳で診断されたか:

I was diagnosed with LGMD when I was 14 years old

最初の症状は何でしたか？  

I experienced difficulty in walking, running, and climbing stairs

ご家族にLGMDの方がいらっしゃいますか？ 

No, I am the only person in my family with this diagnosis

LGMDと共に生きる上で、最も困難だと感じることは何ですか？ 

The greatest challenge for me is that I cannot  do some things such as walking and running.  I tried to control my brain to have enough energy to do the activities that I want.

あなたの最大の功績は何ですか:

One of my biggest achievement is that I have family, friends, and neighbors who encourage me to live a fairly optimistic life.

LGMDは今のあなたにどのような影響を与えていますか？ 

I am ready to face all challenges!

LGMDについて世間に何を知ってもらいたいですか？ 

I want the world to know that a cure is needed to treat and cure all the LGMD patients 🙂

もし明日、あなたのLGMDが「治る」としたら、まず何をしたいですか？:

If I were cure tomorrow, I would run and do everything I never could do!

LGMDスポットライト・インタビュー "をもっと読みたい方、またはボランティアでインタビューに参加したい方は、ウェブサイトをご覧ください： https://www.lgmd-info.org/spotlight-interviews