LGMD SPOTLIGHT INTERVIEW

Nアメ:      Amanda      年齢: 34

国名:  Canada

LGMD Sub-Type:  LGMD2C 

 

A何歳で診断を受けたか:

I was diagnosed at the age of 9.

W最初の症状はどうでしたか？:

I walked on my toes, and often fell unexpectedly as a child – overtime my body started to feel heavy

ご家族にLGMDの方がいらっしゃいますか？  

No – just me!

WLGMDと共に生きる上で、最も困難だと思うことは何ですか？:

At various times in my life I have felt more like a spectator

Also, relying on other people

LGMDは今のあなたにどのような影響を与えていますか？

It has placed the emphasis on gratitude as well as the importance of perspective. Things don’t stop me, or impact me the same way it does others – I would attribute that to managing LGMD

WLGMDについて世界に何を知ってもらいたいですか？:

I want the world to know that LGMD impacts every facet of someone’s life.  Despite the fact that most people who are well adjusted and productive  make it look easy.

Iもし明日、あなたのLGMDが「治る」としたら、まず何をしたいですか？:

If LGMD was cured tomorrow, I would stand up and hug my family with both arms & cry tears of joy!

 

LGMDスポットライト・インタビュー "をもっと読みたい方、またはボランティアでインタビューに参加したい方は、ウェブサイトをご覧ください： https://www.lgmd-info.org/spotlight-interviews