LGMD個人：ダン
LGMD "スポットライト・インタビュー"
名称: Dan 年齢: 40 Yrs. Old 
国名: United States
LGMDサブタイプ: LGMD2i
何歳で診断を受けたか:
私は30歳で診断された。
最初の症状は？:
My first symptom was leg weakness. I remember stepping over a roll of carpet and falling down because my leg gave out. I walked with an unusual gait. And, I was not able to do one sit up without grabbing my legs to pull myself up.
ご家族にLGMDの方はいらっしゃいますか？
いいえ、私の家族でLGMDを患っているのは私だけです。
LGMDと共に生きていく上で、最も困難だと感じることは何ですか？:
Definitely, stairs are my greatest challenge right now. In fact, any step with a riser higher than 3″ is either extremely difficult or a no go. At first, I would compensate for my leg weakness by using my arms on the railing to get up a set of stairs, but in the last few years, my arm strength has been compromised.
あなたの最大の功績は何ですか？:
I have many small triumphs that I have accomplished. One being able to walk across the Brooklyn Bridge in NYC. My biggest accomplishment though would be accepting and embracing my condition (LGMD), by doing so I have opened up so many more doors and possibilities in my life. I have learned that my condition doesn’t define who I am as a person.
LGMDは今のあなたにどのような影響を与えていますか？
LGMD has taught me many things in my life, the biggest one though, would be patience. I have always been a patient person, but I have learned that things don’t happen to me on my timetable, they happen to me when I am ready for them.
LGMDについて世界に知ってもらいたいことは？:
- That Limb Girdle Muscular Dystrophy is not a clothing garment.
- That LGMD is simply a test, we are all going through some sort of test in life, mine is LGMD. It’s a matter of “choice” in how I’m going to react and what I’m going to do about it. I’ve got no right to do any less than anybody else. Yes, I have Limb Girdle Muscular Dystrophy, but it will never have me.
もし明日、あなたのLGMDが "治る "としたら、まず何をしたいですか？:
I would go for a run!
LGMDスポットライト・インタビュー "をもっと読みたい方、またはボランティアでインタビューに参加したい方は、ウェブサイトをご覧ください： https://www.lgmd-info.org/spotlight-interviews
