04/08/2015

이름:   Melissa  AGE:  47 Yrs. Old

국가: 미국
LGMD 하위 유형:  LGMD2i

몇 살에 진단을 받았습니까?:

I was diagnosed at the age of 18

첫 증상은 무엇이었나요?:

As a child, I was clumsy.

다른 가족 중에 LGMD를 가지고 있는 사람이 있나요?:

No, I am the only member in my family diagnosed with limb girdle muscular dystrophy.

LGMD와 함께 생활하면서 가장 큰 어려움은 무엇이라고 생각하십니까?:

The greatest challenge for me is not being able to get up from a chair.

가장 큰 성과는 무엇인가요?

My greatest accomplishment is growing my non-profit, Legacy Counseling Center, into a one and a half million dollar organization that helps thousands of people annually.

LGMD가 지금의 당신이 되기까지 어떤 영향을 미쳤나요?:

I changed my career choice to something that would be wheelchair friendly, in case I would ever be in that position.

세상이 LGMD에 대해 알았으면 하는 것:

At the moment there is no treatment or cure.

내일 LGMD가 "완치"될 수 있다면 가장 먼저 하고 싶은 일은 무엇입니까?:

I would travel without boundaries like I used to.