Living with a progressive neuromuscular disease such as Limb Girdle Muscular Dystrophy can be financially challenging at times. There are many disability related costs that public and private insurance do not typically cover. Home modifications for accessibility, adaptive aids, certain medical supplies, and equipment are just a few examples that individuals may have to purchase with their own funds. Below are some resources that may be able to provide assistance to help offset the financial burden.
Colorado Fund for Muscular Dystrophy (CFMD)
The Colorado Fund for Muscular Dystrophy is a non-profit organization which has made it their mission to increase the quality of life of individuals living with muscular dystrophy or a neuromuscular disorder. They offer grants to individuals who are in need of financial assistance.
- Grants may be awarded for, but not limited to, equipment, therapies, medical supplies, home modifications, or recreation center membership, not fully covered by insurance.
- Grant applicants must be a United States resident with a diagnosis of muscular dystrophy or neuromuscular disorder.
- The maximum request amount per application is $1,000, payable to a single vendor.
- To learn more, please visit https://www.coloradofmd.org/grants/
NMD United: ALEX LANDIS EMERGENCY FUND (ALEF)
NMD United is a non-profit organization composed of adults living with neuromuscular disabilities. This organization generously offers a variety of small grants to a help offset some of the hidden costs of a disability that individuals living on a fixed income or low wages are forced to pay in order to maintain their independence.
- Any adult living with a neuromuscular disability* is eligible to apply for and receive an ALEF Grant.
- Individuals are eligible to apply for and receive up to 3 grants totaling no more than $500 altogether. Former grant recipients of past years are eligible to re-apply.
- Grants are awarded on a first-come, first-serve basis as long as funds remain available. Individuals experiencing an immediate financial hardship, such that their health, safety and/or ability to independently live in the community is impacted, are strongly encouraged to apply.
- Grant requests are subject to approval by NMD United’s ALEF Committee.
- Full details regarding the current ALEF grants available can be found on the NMD United Website