Resource Material

LGMD Awareness Day – Resource Material

The Limb Girdle Muscular Dystrophy Awareness Day team has developed these resources to help you plan and implement your local Limb Girdle Muscular Dystrophy Awareness Day efforts.

By telling your story and sharing your experiences, you help others understand what it is like to live with LGMD. You play an important role in this global awareness campaign. Reach out to your local media reporters, including TV, radio, newspapers, online reporters and bloggers, and give them information about LGMD Awareness Day and your particular story.

Below are a number of resources, including sample press releases, letters-to-the-editor, and governor’s letters and state proclamations that you can download and customize in less than 5 minutes….along with photos to use with social media.  Feel free to use and share these LGMD Resource Tools with others.

Press & Media Resources

Frequently Asked Questions

Sample 2020 Press Release

Sample 2020 Letter to the Editor

LGMD Awareness Day Flyers

LGMD Awareness Day Brochure

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“LGMD Spotlight Interview” Resources

• Visit our Spotlight Interview webpage for some previous interview examples

Individual with LGMD:

Questionnaire for Individuals to Complete

Release of Information Form

• Please Note:  Completed questionnaire, signed release form and your .jpeg photo should be returned via e-mail

LGMD Researcher:

Questionnaire for Researchers to Complete

Release of Information Form

• Please Note:  Completed questionnaire, signed release form and your .jpeg photo should be returned via e-mail

LGMD Organization:

Questionnaire for Organizations to Complete available on-line

• Please Note:  Please submit a .jpeg copy of your logo and an optional group photo via e-mail

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Proclamation Resources

• Visit our Proclamation webpage for more details and assistance

List of State Contacts & Guidelines for Proclamations

Sample State Proclamation

Sample Letter to the Governor

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