
LGMD Awareness Day – Resource Material
The Limb Girdle Muscular Dystrophy Awareness Day team has developed these resources to help you plan and implement your local Limb Girdle Muscular Dystrophy Awareness Day efforts.
By telling your story and sharing your experiences, you help others understand what it is like to live with LGMD. You play an important role in this global awareness campaign. Reach out to your local media reporters, including TV, radio, newspapers, online reporters and bloggers, and give them information about LGMD Awareness Day and your particular story.
Below are a number of resources, including sample press releases, letters-to-the-editor, and governor’s letters and state proclamations that you can download and customize in less than 5 minutes….along with photos to use with social media. Feel free to use and share these LGMD Resource Tools with others.
Press & Media Resources
Frequently Asked Questions
Sample 2020 Press Release
Sample 2020 Letter to the Editor
LGMD Awareness Day Flyers
LGMD Awareness Day Brochure
“LGMD Spotlight Interview” Resources
- Visit our Spotlight Interview webpage for some previous interview examples
Individual with LGMD:
Questionnaire for Individuals to Complete
Release of Information Form
- Please Note: Completed questionnaire, signed release form and your .jpeg photo should be returned via e-mail
LGMD Researcher:
Questionnaire for Researchers to Complete
Release of Information Form
- Please Note: Completed questionnaire, signed release form and your .jpeg photo should be returned via e-mail
LGMD Organization:
Questionnaire for Organizations to Complete available on-line
- Please Note: Please submit a .jpeg copy of your logo and an optional group photo via e-mail
Proclamation Resources
- Visit our Proclamation webpage for more details and assistance
List of State Contacts & Guidelines for Proclamations
Sample State Proclamation
Sample Letter to the Governor
Assorted Photos to Download
* * * Please note: If you need a different photo or a higher resolution logo file, please e-mail us
- Photo that can be used on your Facebook page as your ‘cover photo‘
- Photo that can be used on your Facebook page as your ‘profile photo
‘
- ‘Mark your calendar’ photo
- ‘Web page banner’ photo
- LGMD Awareness Day logo