7th Annual LGMD Awareness Day – September 30, 2021
As the world celebrates the 7th annual ДЕНЬ ИНФОРМИРОВАНИЯ О БОЛЕЗНИ ЛЕГКИХ на 30 сентября 2021 года, we invite you to help us Advocate • Educate • Celebrate!
There is great strength in awareness, understanding and unity. The LGMD community demonstrates global connectivity each year when we campaign together and gain recognition for limb-girdle muscular dystrophy (LGMD). With over 30 different genetic types of LGMD, the act of collaborating globally makes us stronger than we could ever be alone. Whether you are a long-time community member, or new to the scene, your participation in the 2021 LGMD Awareness Day activities is important. Awareness can spread much faster with more individuals, from all parts of the world, sharing their spirit remotely through re-posts, shout outs and snaps of the LGMD Awareness sticker to your favorite platforms. There is power in action.
TOGETHER WE ARE STRONGER!
Take a moment to shine a light on the importance of LGMD Awareness today!
ADVOCATE:
2021 GIRDIE STICKER CAMPAIGN
Upload a picture of you and your Girdie sticker to social media on or around September 30. Please include your location, the hashtag #LGMDawareness and don’t forget to tag @LGMDawareness so we can see where in the world Girdie is spreading LGMD awareness!
EDUCATE:
KNOW THE FACTS ABOUT LGMD & HELP RAISE AWARENESS
Help Girdie educate the world about LGMD. Share these facts with family, friends, co-workers, and your community.
1. Limb-girdle muscular dystrophy (LGMD) is rare neuromuscular conditions that causes severe muscle loss and affects people all over the world.
2. Early symptoms of limb-girdle muscular dystrophy (LGMD) may include difficulty climbing stairs, frequent falls, difficulty rising from a seated position or even the inability to stand on toes.
3. Currently there is no cure, but every year, science is moving closer to a treatment for limb-girdle muscular dystrophy (LGMD) thanks to the members of the scientific community and the organizations who fund their research efforts.
4. There are over 30 different types of limb-girdle muscular dystrophy (LGMD), each caused by mutations in a different gene. Because the different forms of LGMD look very similar in clinical tests, genetic testing is required to confirm a diagnosis.
For more LGMD Facts, click здесь.
CELEBRATE:
LIME GREEN FOR LIMB GIRDLE AWARENESS CAMPAIGN
As you celebrate, consider wearing lime green colored attire and wristbands to help raise awareness. When posting your pictures on social media, please include your location, the hashtag #LGMDawareness and don’t forget to tag @LGMDawareness.
LGMD Awareness Foundation, Inc. and the consortium of LGMD Foundations
Коалиция за лечение кальпаином 3
Фонд CureLGMD2i
Фонд Джайна
Фонд Курта и Питера
Фонд LGMD-1D DNAJB6
Фонд LGMD2D
Фонд исследований LGMD2i
Фонд LGMD2L
Лаборатория Макколл-Локвуд по изучению медицины
Stichting SpierKracht
Фонд Speak
Наши партнеры по адвокации
ADM Argentina – Grupo LGMD Argentina
Asociación Proyecto Alpha
Ayushkama Foundation
Camronscure
Conquistando Escalones ODV
Daniel Ferguson LGMD Foundation Ltd
GFB Onlus
Groupe d’intérêt LGMD de l’AFM-TELETHON
Indian Association of Muscular Dystrophy
LGMD Network CAB
Ассоциация мышечной дистрофии
Muscular Dystrophy Association of NZ
Мышечная дистрофия Великобритании
Nationwide Children’s Hospital
Newcastle University
Russian LGMD Patient Group
Syneos Health
TREAT-NMD Neuromuscular Network Ltd
UILDM – Sezione Milano – Gruppo Cingoli
We Gratefully Acknowledge
for generously underwriting this year’s Girdie Sticker Campaign
Наши партнеры по адвокации
