Are you An Individual Living with Limb Girdle Muscular Dystrophy (LGMD)? A Researcher working to find a cure and treatment for LGMD? A Representative from an organization focused on LGMD? If so, please consider volunteering to be featured in an
LGMD CLINIC STAFF: Satish Khadilkar
LGMD CLINIC STAFF: Ursula Moore
INDIVIDUAL WITH LGMD: Lisa
INDIVIDUAL WITH LGMD – Saira
INDIVIDUAL WITH LGMD: Neil
ORGANIZATION: Stichting Spierkracht

LGMD ORGANIZATION: Stichting Spierkracht WEBSITE: www.stichtingSpierKracht.com FACEBOOK: https://www.facebook.com/stichtingspierkracht.nl INSTAGRAM: https://www.instagram.com/stichting_spierkracht WHAT LGMD SUB-TYPE DOES YOUR ORGANIZATION FOCUSES ON: We focus on LGMD2D / R3 Alpha Sarcoglycan-related IF YOU FOCUS ON A SUB-TYPE, IS THERE A REGISTRY AND HOW CAN
LGMD CLINIC STAFF: Lauren Brady
ORGANIZATION: Inclusive

ORGANIZATION: Inclusive WEBSITE: https://www.iminclusive.com FACEBOOK: https://www.facebook.com/Iminclusive INSTAGRAM: @iminclusive IS THERE A SPECIFIC LGMD SUB-TYPE YOUR ORGANIZATION FOCUSES ON? * Inclusive supports people living with LGMD, and Inclusive works towards making online and offline environments are accessible for People Of Determination
INDIVIDUAL WITH LGMD: Kaya
LGMD CLINIC STAFF: Rasha El Sherif
INDIVIDUAL WITH LGMD: Tatyana
Girdie: The New LGMD Ambassador
INDIVIDUAL WITH LGMD: Dylan
LGMD CLINIC STAFF: Brent Beson
INDIVIDUAL WITH LGMD: Eric
INDIVIDUAL WITH LGMD: İbrahim
INDIVIDUAL WITH LGMD: Denise
LGMD RESEARCHER: Katherine Mathews
INDIVIDUAL WITH LGMD: Chuck
LGMD RESEARCHER: Antoine Dufour
INDIVIDUAL WITH LGMD: Natasha
ORGANIZATION: Cure VCP Disease, Inc.

NAME OF ORGANIZATION: Cure VCP Disease, Inc. WEBSITE: https://www.curevcp.org FACEBOOK: https://www.facebook.com/curevcpdisease/ TWITTER: @LostTexanInGA WHAT LGMD SUB-TYPE DOES YOUR ORGANIZATION FOCUSES ON: VCP diseases and specifically Inclusion Body Myopathy associated with Paget’s disease of bone and Frontotemporal Dementia
INDIVIDUAL WITH LGMD: Patrick
INDIVIDUAL WITH LGMD: Rosamund
ORGANIZATION: LGMD-1D DNAJB6 Foundation
Individual with LGMD: William
Individual with LGMD: Tasha
INDIVIDUAL WITH LGMD: Jillena
ORGANIZATION: Breathe With MD

NAM E OF ORGANIZATION: Breathe with MD, Inc. WEBSITE: https://breathewithmd.org/ FACEBOOK: https://www.facebook.com/BreatheWithMD/ TWITTER: @BreatheMD WHAT LGMD SUB-TYPE DOES YOUR ORGANIZATION FOCUSES ON: Breathe with MD focuses on all forms of neuromuscular diseases (NMD) including Limb Girdle Muscular Dystrophy (LGMD).
INDIVIDUAL WITH LGMD: Hasan
LGMD RESEARCHER: H. Criss Hartzell
INDIVIDUAL WITH LGMD: Tasha
LGMD ORGANIZATION: AFM-Téléthon –

NAME OF LGMD ORGANIZATION: French LGMD Patient Group (GI LGMD) WEBSITE: https://lgmd.afm-telethon.frFACEBOOK: https://www.facebook.com/GILGMD/TWITTER: https://twitter.com/gilgmd WHAT LGMD SUB-TYPE DOES YOUR ORGANIZATION FOCUS ON?: The French LGMD Patient Group was created at the beginning of 2018 and is part of the AFM-Téléthon
ORGANIZATION: Conquistando Escalones

NAME OF ORGANIZATION: CONQUISTANDO ESCALONES WEBSITE: www.conquistandoescalones.org FACEBOOK: www.facebook.com/conquistandoescalones TWITTER: @AceDistrofia WHAT LGMD SUB-TYPE DOES YOUR ORGANIZATION FOCUSES ON: We focus on Limb Girdle Muscular Dystrophy type 1F (LGMD1F) IF YOU FOCUS ON A SUB-TYPE, IS THERE
INDIVIDUAL WITH LGMD: Andrea
INDIVIDUAL WITH LGMD: Melissa
LGMD RESEARCHER: Qi Lu

“LGMD SPOTLIGHT ON RESEARCH” LGMD RESEARCHER: Dr. Qi Lu Affiliation: McColl Lockwood Laboratory for Muscular Dystrophy Research Role or Position: Director, McColl Lockwood laboratory for muscular dystrophy research, Carolinas Medical center, Atrium Health, Charlotte What education and training did you
ORGANIZATION: GFB ONLUS

NAME OF ORGANIZATION: GFB ONLUS (GRUPPO FAMILIARI BETA-SARCOGLICANOPATIE ONLUS) WEBSITE: www.lgmd2e.org FACEBOOK: www.facebook.com/gfbonlus-1045732368903903 TWITTER: twitter.com/gfbonlus WHAT LGMD SUB-TYPE DOES YOUR ORGANIZATION FOCUSES ON: We focus on Limb Girdle Muscular Dystrophy type 2E (LGMD2E) IF YOU FOCUS ON A
INDIVIDUAL WITH LGMD: Heidi
ORGANIZATION: LGMD2i Research Fund
LGMD RESEARCHER: Linda Lowes

LGMD “Spotlight Interview on Research” LGMD RESEARCHER: Linda Lowes Affiliation: Nationwide Children’s Hospital, Columbus, Ohio USA Role or Position: Principal Investigator, Research Institute at Nationwide Children’s Hospital, Associate Professor Department of Pediatrics, The Ohio State University What education and training did you have to
INDIVIDUAL WITH LGMD: Dan
INDIVIDUAL WITH LGMD: Nicole
Individual with LGMD: Rodrigo
ORGANIZATION: Beyond Labels & Limitations

NAME OF ORGANIZATION: Beyond Labels & Limitations WEBSITE: www.BeyondLabelsLimitations.com FACEBOOK: https://www.facebook.com/groups/29111827568/ YouTube Channel: www.youtube.com/user/John71377 WHAT LGMD SUB-TYPE DOES YOUR ORGANIZATION FOCUS ON: LGMD2A / Calpainopathy IF YOU FOCUS ON A SUB-TYPE, IS THERE A REGISTRY AND HOW
INDIVIDUAL WITH LGMD: Aric
LGMD RESEARCHER: Melissa Spencer
INDIVIDUAL WITH LGMD: Mackenzie
ORGANIZATION: LGMD2L Foundation
LGMD RESEARCHER: Mattia Quattrocelli

LGMD “Spotlight Interview on Research” LGMD RESEARCHER: Mattia Quattrocelli Affiliation: McNally’s laboratory, Center for Genetic Medicine, Feinberg School of Medicine, Northwestern University, Chicago, IL Role or Position: Postdoctoral Fellow What education and training did you have to arrive at your