LGMD “Spotlight Interview”

İsim:  Aric   Yaş:  22 yrs. old

Ülke: Birleşik Devletler

LGMD Sub-Type:  LGMD2B

 

Kaç yaşında teşhis konuldu?:

Bana 21 yaşımda teşhis konuldu.

İlk belirtileriniz neydi?:

My first symptoms were not being able to climb stairs or stand on my tip toes.

LGMD hastası olan başka aile üyeleriniz var mı?

Benim yok.

LGMD ile yaşamanın en büyük zorluklarının ne olduğunu düşünüyorsunuz?:

In my normal day, I have trouble walking up stairs and getting out of my car —  things that most people would never think about. That’s the biggest challenge I think, trying to help people better understand what people like me are going through. It’s tough to describe why I can’t do normal everyday activities like I used to.

En büyük başarınız nedir?:

I’ve had accomplishments in sports along with academics over the past few years while I was in high school. In the few jobs I’ve worked I’ve reach goals that no other young person has ever came close to. I honestly think my biggest accomplishment is not giving up the fight I’m currently in. This horrible disease can really take so much out of one person, the strength and message I must tell myself every day just to get out of bed is my biggest accomplishment. I will continue to fight for a better life for me and for others living with MD, I’m still very young I believe I can now make a difference in this world.

LGMD bugün olduğunuz kişi olmanızda sizi nasıl etkiledi?

LGMD has turned me into such a stronger person and the irony in the statement is kind of funny. I treat every day like a blessing, I’ve recently started my own team for a local MD event and I am currently working on my own event! I just want to make a better place and provide hope for every child and adult going through this.

Dünyanın LGMD hakkında ne bilmesini istersiniz?:

I just want the world to know the struggle that we go through, how hard it can be just to continue going on with everyday life. I want the world to know.

LGMD hastalığınız yarın "tedavi edilebilseydi", yapmak isteyeceğiniz ilk şey ne olurdu?:

If I was cured tomorrow I’d honestly just talk off running, I’d invite all my family and friends and we would just run as far as we could like Forest Gump. We’d all just laugh and cry all the way. The world would definitely know that I was a cured man!

 

To read more “LGMD Spotlight Interviews” or to volunteer to be featured in an upcoming interview, please visit our website at: https://www.lgmd-info.org/spotlight-interviews