LGMD "焦点访谈" – 02/18/2016

名称:    Niluwan         年龄:  25 years.

国家:  Sri Lanka

LGMD 子类型：   Unkown

At what age were you DIAGNOSED?

I was diagnosed when I was 13 years old.

您最初的症状是什么？

I experienced difficulty in climbing stairs.

您有其他家庭成员患有 LGMD 吗？

No. I am the only person in my entire family.

您认为 LGMD 患者在生活中面临的最大挑战是什么？?

The greatest challenge is climbing stairs. Also travel in public transport.  It is also a challenge to find a suitable job.

您最大的成就是什么？

The greatest accomplishment is completing my studies.

LGMD 是如何影响您成为今天的自己的？

LGMD influenced me to become strong and face challenges in the life.

您希望世界了解 LGMD 的哪些方面？:

Everyone in the world must know about LGMD. Many people don’t know what LGMD is. If they know they can provide facilities and help LGMD people.

如果您的 LGMD 明天就能 "治愈"，您首先想做的是什么？:

I will run everywhere.

如需阅读更多 "LGMD 焦点访谈"，或自愿参加即将举行的访谈，请访问我们的网站： https://www.lgmd-info.org/spotlight-interviews。