Outcome Measures: What Are They and Why Are They Important For Clinical Trials
虚拟Presenter: Lindsay N Alfano, DPT, PCS Principal Investigator, Assistant Professor [...]
Maintaining Breathing Function with a Neuromuscular Disease
虚拟Maintaining Breathing Function with a Neuromuscular Disease Tuesday, March 30 [...]
LGMD European Masterclass
虚拟Learn more at https://treat-nmd.org/engagement/treat-nmd-education-commitee/previous-masterclasses/#1588585085627-17dc8484-e0dc The closing date for applications is [...]
MDCC “Respiratory and Sleep Complications of Muscular Dystrophies”
虚拟To register and access the agenda, please visit the Muscular [...]
2021 肌张力障碍患者和家庭会议
科拉维尔万豪酒店及会议中心 300 E 9th St, Coralville, IA, United StatesRegistration for the 2021 Iowa Wellstone Dystroglycanopathy Patient & Family [...]
第七届 LGMD 宣传日
全球第 11 届年度 CureLGMD2i 赌场之夜
Eden Resort & Suites Lancaster, PA, United StatesMDA 倡导研究所:开发罕见神经肌肉疾病的治疗方法
虚拟MDA Advocacy Institute: "Unlocking Treatment Development for Rare Neuromuscular Diseases" [...]
2022 年罕见病日
全球28 FEBRUARY is Rare Disease Day Globally raising awareness and [...]