03/27/2015

名称:  Naveen  年龄:32 岁

COUNTRY: India

LGMD Sub-Type:  Unknown

 

您在几岁时被确诊:

I was diagnosed at the age of 15.

您最初的症状是什么？:

I was experiencing difficult in running and had frequent falls.

您是否有其他家庭成员患有 LGMD： 

No, I am the only one.

您认为 LGMD 患者在生活中面临的最大挑战是什么？:

My greatest challenges are in climbing stairs, walking in crowded places and lower clothing.

您最大的成就是什么？:

My greatest accomplishment is riding my bike.

LGMD 是如何影响您成为今天的自己的？ 

I am ready to face any challenge!

您希望世界了解 LGMD 的哪些方面？:

I want Support from the world.

如果您的 LGMD 明天就能 "治愈"，您首先想做的是什么？:

I would want to go running.