09/22/2015: 

姓名: Bình  年龄: 30

国家： Vietnam

LGMD 子类型: LGMD2A / Calpainopathy

 

您在几岁时确诊:

I was diagnosed with LGMD when I was 14 years old

你最初的症状是什么？  

I experienced difficulty in walking, running, and climbing stairs

您是否有其他家庭成员患有肺结核？ 

No, I am the only person in my family with this diagnosis

您认为患有 LGMD 的最大挑战是什么？ 

The greatest challenge for me is that I cannot  do some things such as walking and running.  I tried to control my brain to have enough energy to do the activities that I want.

您最大的成就是什么:

One of my biggest achievement is that I have family, friends, and neighbors who encourage me to live a fairly optimistic life.

lgmd 是如何影响你成为今天的自己的？ 

I am ready to face all challenges!

您想让世界了解 LGMD 的哪些方面？ 

I want the world to know that a cure is needed to treat and cure all the LGMD patients 🙂

如果明天就能 "治愈 "你的老年痴呆症，你最想做的第一件事是什么？:

If I were cure tomorrow, I would run and do everything I never could do!

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