LGMD “SPOTLIGHT INTERVIEW” – 02/18/2016

Name:    Niluwan         Age:  25 years.

Country:  Sri Lanka

LGMD Sub-Type:   Unkown

At what age were you DIAGNOSED?

I was diagnosed when I was 13 years old.

What were your first SYMPTOMS?

I experienced difficulty in climbing stairs.

Do you have other family members who have LGMD?

No. I am the only person in my entire family.

What do you find to be the greatest challenges in living with LGMD?

The greatest challenge is climbing stairs. Also travel in public transport.  It is also a challenge to find a suitable job.

What is your greatest ACCOMPLISHMENT?

The greatest accomplishment is completing my studies.

How has LGMD influenced you into becoming the person you are today:

LGMD influenced me to become strong and face challenges in the life.

What do you want the world to know about LGMD:

Everyone in the world must know about LGMD. Many people don’t know what LGMD is. If they know they can provide facilities and help LGMD people.

If your LGMD could be “cured” tomorrow, what would be the first thing that you would want to do:

I will run everywhere.

To read more “LGMD Spotlight Interviews” or to volunteer to be featured in an upcoming interview, please visit our website at:  https://www.lgmd-info.org/spotlight-interviews