Spotlights

LGMD Awareness Day Toolkit

The LGMD Awareness Foundation is on a mission to shine a global spotlight on limb-girdle muscular dystrophy (LGMD) and champion the cause for improved access to diagnosis, care, and treatment for those living with this condition. As we celebrate a decade of progress, we will be rolling out an Awareness Day Toolkit in spring of 2024, designed to empower and engage our community in advocacy like never before.

LGMD Awareness Day Toolkit

Explore our ‘Spotlights’ section, where we shine a light on the inspiring stories and invaluable contributions of individuals with LGMD, their dedicated caregivers, supporting organizations, and the clinicians who support them.

Here, we not only share the moving and motivational stories of individuals living with LGMD but also celebrate the unwavering commitment of their caregivers who stand by them every step of the way. Beyond personal narratives, the ‘Spotlights’ section also showcases the commendable efforts of organizations that tirelessly work towards bettering the lives of those with LGMD. Additionally, we pay tribute to the clinicians and medical professionals who bring their expertise and compassion to the forefront, ensuring that those with LGMD receive the best care and support possible. Join us in this journey of recognition, inspiration, and gratitude.