The Limb-Girdle Muscular Dystrophy Awareness Day team has developed these resources to help you plan and implement your local LGMD Awareness Day efforts.
By telling your story and sharing your experiences, you help others understand what it is like to live with LGMD. You play an important role in this global awareness campaign. Reach out to your local media reporters, including TV, radio, newspapers, online reporters and bloggers, and give them information about LGMD Awareness Day and your particular story.
Below are a number of resources, including sample press releases, letters-to-the-editor, and governor’s letters and state proclamations that you can download and customize in less than 5 minutes….along with photos to use with social media. Feel free to use and share these LGMD Resource Tools with others.
Our Advocacy Partners
