LGMD Awareness Foundation, Inc. is an advocacy organization dedicated to globally raising awareness of the rare neuromuscular diseases known as Limb Girdle Muscular Dystrophy (LGMD).  In collaboration with other LGMD foundations, our focus is to provide curated educational information and resources for the LGMD community and public.

BOARD OF DIRECTORS

Carol Abraham, President / Treasurer

  • Founder of LGMD Awareness Day
  • Co-Chairperson for National Limb Girdle Muscular Dystrophy Conference
  • B.S. from Mount Mary University
  • Former Registered Occupational Therapist (OTR)
  • Former small business owner
  • Long history of being an advocate for individuals with disabilities
  • Diagnosed with LGMD 2A / R1 Calpain 3-related

Karen Cole, Vice President

  • “Lime Green for LGMD” Campaign Coordinator
  • B.S. from Northern Illinois University
  • Former Elementary Teacher and Religous Education Coordinator
  • Dedicated LGMD Patient Advocate
  • Diagnosed with LGMD 2i / R9 Dystroglycan-related

Michele Wrubel, Sectretary

  • Co-founder of Coalition to Cure Calpain 3 in 2010
  • B.S. from University of Rhode Island, summa cum laude
  • Decades of non-profit experience in leadership positions
  • Formerly a media supervisor at Ammirati & Puris/Lintas
  • Diagnosed with LGMD 2A / R1 Calpain 3-related

LGMD AWARENESS DAY

Limb Girdle Muscular Dystrophy Awareness Day, which is celebrated annually worldwide on September 30th, is a project of the LGMD Awareness Foundation, Inc.

LGMD ADVISORY BOARD

Bryan Barber LGMD2d Foundation  (LGMD 2D/R3)

Kelly BrazzoCure LGMD2i Foundation  (LGMD 2I/R9)

Kent FrewingKurt+Peter Foundation (LGMD 2C/R5)

Scott FrewingKurt+Peter Foundation (LGMD 2C/R5)

Jean-Pierre LaurentLGMD2i Fund  (LGMD 2I/R9)

Jennifer Levy — Coalition to Cure Calpain 3 (LGMD 2A/R1)

Jane McColl Lockwood – McColl-Lockwood Laboratory for MD Research (LGMD 2I/R9)

Sarah ShiraJain Foundation (LGMD 2B/R2)

Brad WilliamsJain Foundation (LGMD 2B/R2)

• Ralph Yaniz –  LGMD2L Foundation (LGMD 2L/R12)

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