LGMD Awareness Foundation, Inc. is a 501(c)(3) non-profit advocacy organization dedicated to globally raising awareness of the rare neuromuscular diseases known as Limb Girdle Muscular Dystrophy (LGMD).  In collaboration with other LGMD foundations, our focus is to provide curated educational information and resources for the LGMD community and public.

By increasing awareness of and advocating for individuals living with Limb Girdle Muscular Dystrophy, we hope individuals living with this progressive debilitating disease will have an easier time accessing diagnosis, care and treatment around the world.    

We also coordinate a worldwide Limb Girdle Muscular Dystrophy (LGMD) Awareness Day annually on Sept. 30. 

LGMD Awareness Foundation, Inc. (EIN: 85-1504937) is a 501 (c)(3) tax-exempt public charity.  As such, all donations are fully tax deductible. Download our IRS determination letter here


Carol Abraham, President / Treasurer

  • Founder of LGMD Awareness Day
  • Co-Chairperson for National Limb Girdle Muscular Dystrophy Conference
  • B.S. from Mount Mary University
  • Former Registered Occupational Therapist (OTR)
  • Former small business owner
  • Long history of being an advocate for individuals with disabilities
  • Diagnosed with LGMD 2A / R1 Calpain 3-related

Karen Cole, Vice President

  • “Lime Green for LGMD” Campaign Coordinator
  • B.S. from Northern Illinois University
  • Former Elementary Teacher and Religous Education Coordinator
  • Dedicated LGMD Patient Advocate
  • Diagnosed with LGMD 2i / R9 Dystroglycan-related

Michele Wrubel, Sectretary

  • Co-founder of Coalition to Cure Calpain 3 in 2010
  • B.S. from University of Rhode Island, summa cum laude
  • Decades of non-profit experience in leadership positions
  • Formerly a media supervisor at Ammirati & Puris/Lintas
  • Diagnosed with LGMD 2A / R1 Calpain 3-related


Limb Girdle Muscular Dystrophy Awareness Day, which is celebrated annually worldwide on September 30th, is a project of the LGMD Awareness Foundation, Inc. The first annual LGMD Awareness Day was celebrated in 2015.


Bryan Barber LGMD2d Foundation  (LGMD 2D/R3)

Kelly BrazzoCure LGMD2i Foundation  (LGMD 2I/R9)

Kent FrewingKurt+Peter Foundation (LGMD 2C/R5)

Scott FrewingKurt+Peter Foundation (LGMD 2C/R5)

Jean-Pierre LaurentLGMD2i Fund  (LGMD 2I/R9)

Jennifer Levy — Coalition to Cure Calpain 3 (LGMD 2A/R1)

William Lowery LGMD-1D DNAJB6 Foundation (LGMD 1D/D1)

Jane McColl Lockwood – McColl-Lockwood Laboratory for MD Research (LGMD 2I/R9)

Sarah ShiraJain Foundation (LGMD 2B/R2)

Brad WilliamsJain Foundation (LGMD 2B/R2)

• Ralph Yaniz –  LGMD2L Foundation (LGMD 2L/R12)


LGMD Awareness Foundation, Inc. is a proud member of TREAT-NMD

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