This is by no means a complete list. Resources do change without notice. We try our best to keep the list accurate and up-to-date. We hope that as you learn of new resources, you will send them to us at firstname.lastname@example.org so that we can share them with the LGMD community.
The COVID-19 Pandemic has caused financial hardship for many individuals and families. Below is a list of organizations that are offering various financial assistance to individuals with LGMD and their families.
Eligibility criteria and deadlines vary per program.
Living in the Light of Rare Diseases – The I Stay Home For Rare Fund is currently available in the USA in amounts ranging from $500-$2,500, based on financial need.
Laughing At My Nightmare – The COVID-19 Resource Relief (CRR) program provides financial assistance to individuals living with any disability, diagnosis, or chronic illness to help alleviate the burden of the coronavirus-related quarantines and social distancing practices. This assistance is provided in the form of one $100 Visa Gift Card to be used for food, hygiene products, and other living expenses associated with self-isolation and quarantine.
National Organization for Rare Disorders (NORD) – the NORD COVID-19 Critical Relief Program will provide up to $1,000 annually to those eligible to support critical, non-medical needs. Contact: 203.242.0497 or Email: COVID19assistance@rarediseases.org
NMD United – Any adult living with a neuromuscular disability is eligible to apply for and receive an ALEF Grant. This organization generously offers a variety of small grants to help offset some of the the hidden costs of a disability that individuals living on a fixed income or low wages are forced to pay in order to maintain their independence.
The Speak Foundation – The Speak Foundation’s COVID-19 Disaster Relief Program is funded for individuals and families living with Limb Girdle Muscular Dystrophy in the USA.