The LGMD Awareness Foundation is on a mission to shine a global spotlight on limb-girdle muscular dystrophy (LGMD) and champion the cause for improved access to diagnosis, care, and treatment for those living with this condition. As we celebrate a decade of progress, we will be rolling out an Awareness Day Toolkit in spring of 2024, designed to empower and engage our community in advocacy like never before.
Explore our ‘Spotlights’ section, where we shine a light on the inspiring stories and invaluable contributions of individuals with LGMD, their dedicated caregivers, supporting organizations, and the clinicians who support them.
SAVE THE DATE: The 2025 International LGMD Conference will be held next July 18-21, 2025 in Orlando, FL! Bring the family and join us at the J.W. Marriott Orlando Grande Lakes. Early Bird registration will open this August. https://nationallimbgirdlemusculardystrophyconference.com/