Upcoming LGMD Events

Spirit Night at Sky Zone


Thursday, September 27

4-8 p.m.

Sky Zone Trampoline Park

401 Fernhill Ave, Fort Wayne, IN 46805

For more information, please contact Jill Millington at lilshortness040609@gmail.com

8th Annual Casino Night for CureLGMD2i

Saturday, October 13 


Eden Resort & Suites

222 Eden Road, Lancaster, Pennsylvania 17601

For more information, please contact Kelly Brazzo at kbrazzo@yahoo.com or message the Cure LGMD2i Foundation through their Facebook page  https://www.facebook.com/CureLGMD2i 

The University of Kansas Medical Center

Limb Girdle Muscular Dystrophy Patient Day

Saturday, October 20, 2018 from 10 a.m. – 3 p.m.

KU Clinical Research Center

4350 Shawnee Mission Parkway

Fairway, KS 66205

  • Lunch will be provided – RSVP by 10/1/2018 (Space is limited)
  • RSVP to Kiley Higgs   Email:  ksims2@kumc.edu Phone:  913-945-9922

Hosted by Jeffrey Statland, MD, KU Research Team and the Jain Foundation

Neuromuscular Symposium

Sat, November 3, 2018

9:00 AM – 4:00 PM MDT

University of Colorado Hospital

Bruce Schroffel Conference Center Inpatient Pavillion 2

12505 E 16th Ave

Aurora, CO 80045

  • The Department of Neurology at the University of Colorado is pleased to announce that it will host a Neuromuscular Symposium for those affected by Charcot Marie Tooth diseases, Limb Girdle Muscular Dystrophies, Pompe disease, and Inclusion Body Myositis. This event is open to patients, caregivers, their families, and healthcare providers.
  • Lunch will be provided.
  • COST: Free! But, registration is limited and required.
  • For more information, please contact Sarrah Knause at 303-724-2188
  • Website

The Speak Foundation 11th Annual Conference for Individuals with Neuromuscular Disorders & their Loved Ones


Friday, June 28th – Sunday, June 30th, 2019

~ Watch for further details regarding registration and hotel accommodations ~


Westin Buckhead Atlanta | 3391 Peachtree Rd NE, Atlanta, GA 30326 USA
Phone: 404-365-0065 | Reservations: 800-253-1397

Feel free to email Jessica@thespeakfoundation.com or thespeakfoundation@yahoo.com with any questions. 

2019 National Limb Girdle Muscular Dystrophy Conference

Friday, August 30—Sunday, September 1, 2019

Chicago, Illinois (USA)

~ Watch for further details regarding location, registration and hotel accommodations ~

A conference dedicated to bringing every LGMD patient into an active role seeking to find cures and treatments alongside doctors, biotech, and pharmaceutical companies.

For more information:  www.NationalLimbGirdleMuscularDystrophyConference.com

The 2019 National Limb Girdle Muscular Dystrophy Conference is a project of the Speak Foundation (EIN 26-2087516), a 501 (c)(3) tax-exempt public charity.  Learn more at TheSpeakFoundation.com

* * If you have an LGMD related event that you would like added to our calendar of events, please send us an e-mail with all of the event details.

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