Name: 7th International Myology Congress
Start: 2022-09-12T00:00:00+00:00
End: 2022-09-15T23:59:59+00:00
Location: Acropolis Congress Center

LGMD Awareness Day Toolkit

The LGMD Awareness Foundation is on a mission to shine a global spotlight on limb-girdle muscular dystrophy (LGMD) and champion the cause for improved access to diagnosis, care, and treatment for those living with this condition. As we celebrate a decade of progress, we will be rolling out an Awareness Day Toolkit in spring of 2024, designed to empower and engage our community in advocacy like never before.

LGMD Awareness Day Toolkit

Spotlights

Explore our ‘Spotlights’ section, where we shine a light on the inspiring stories and invaluable contributions of individuals with LGMD, their dedicated caregivers, supporting organizations, and the clinicians who support them.

List
Month
Day

1:00 pm

February 24, 2022 @ 1:00 pm - 2:00 pm

Lunch & Learn: Gene Therapy 101

Virtual

Free

7:00 pm

February 24, 2022 @ 7:00 pm - 8:00 pm

MDA Advocacy Institute: Unlocking Treatment Development for Rare Neuromuscular Diseases

Virtual

Free

Meet
Girdie

LGMD Awareness Day Toolkit

About LGMD Awareness Day

Initiatives

Resources

Knowledge Base

Genetic Testing

All About LGMD

Navigate LGMD

Community Network

LGMD Advocacy Bundle (LAB) Program

Spotlights

Individuals With LGMD

LGMD Researchers

LGMD Clinic Staff

LGMD Organizations

Events

Lunch & Learn: Gene Therapy 101

MDA Advocacy Institute: Unlocking Treatment Development for Rare Neuromuscular Diseases

Sign up for email updates!

Meet Girdie

LGMD Awareness Day Toolkit

About LGMD Awareness Day

Initiatives

Resources

Knowledge Base

Genetic Testing

All About LGMD

Navigate LGMD

Community Network

LGMD Advocacy Bundle (LAB) Program

Spotlights

Individuals With LGMD

LGMD Researchers

LGMD Clinic Staff

LGMD Organizations

Events

Sign up for email updates!

Meet
Girdie