Name: Connecting for a Cure – Virtual Event 2024
Start: 2024-09-28T19:30:00-04:00
End: 2024-09-28T20:30:00-04:00

LGMD Awareness Day Toolkit

The LGMD Awareness Foundation is on a mission to shine a global spotlight on limb-girdle muscular dystrophy (LGMD) and champion the cause for improved access to diagnosis, care, and treatment for those living with this condition. As we celebrate a decade of progress, we will be rolling out an Awareness Day Toolkit in spring of 2024, designed to empower and engage our community in advocacy like never before.

LGMD Awareness Day Toolkit

Spotlights

Explore our ‘Spotlights’ section, where we shine a light on the inspiring stories and invaluable contributions of individuals with LGMD, their dedicated caregivers, supporting organizations, and the clinicians who support them.

List
Month
Day

All Day

July 12 - July 13

2024 Dystroglycanopathy Patient and Family Conference

Hyatt Regency and Conference Center Coralville, IA 300 E. 9th Street, Coralville

Meet
Girdie

LGMD Awareness Day Toolkit

About LGMD Awareness Day

Initiatives

Resources

Knowledge Base

Genetic Testing

All About LGMD

Navigate LGMD

Community Network

LGMD Advocacy Bundle (LAB) Program

Spotlights

Individuals With LGMD

LGMD Researchers

LGMD Clinic Staff

LGMD Organizations

Events

2024 Dystroglycanopathy Patient and Family Conference

Sign up for email updates!

Meet Girdie

LGMD Awareness Day Toolkit

About LGMD Awareness Day

Initiatives

Resources

Knowledge Base

Genetic Testing

All About LGMD

Navigate LGMD

Community Network

LGMD Advocacy Bundle (LAB) Program

Spotlights

Individuals With LGMD

LGMD Researchers

LGMD Clinic Staff

LGMD Organizations

Events

Sign up for email updates!

Meet
Girdie