Rare Disease Day 2022
Worldwide28 FEBRUARY is Rare Disease Day Globally raising awareness and [...]
International Wheelchair Day 2022
WorldwideFirst launched in 2008, International Wheelchair Day is celebrated every March [...]
RegenMedEd Webinar: The Critical Role of Patients in Advancing Gene Therapy Treatments for Rare Diseases
VirtualJoin the FDA’s Center for Biologics Evaluation and Research (CBER) [...]
Advocacy Webinar on Accessing Care in the Home
VirtualHome-based care is proven to result in better health outcomes [...]
Australasia Limb Girdle Muscular Dystrophy Virtual Masterclass
VirtualTaking place on the 11th and 12th of May 2022, [...]
LGMD Global Advocacy Summit
VirtualYou are invited to the 2022 LGMD Global Advocacy Summit! [...]
MDA Engage Webinar: Limb-girdle muscular dystrophy (LGMD) Symposium
VirtualThis educational event empower individuals and families with knowledge and [...]
2022 Dystroglycanopathy Patient and Family Conference
Coralville Marriott Hotel & Conference Center 300 E 9th St, Coralville, IA, United StatesMark your calendars for the 2022 Dystroglycanopathy Patient and Family [...]
MDA Engage: Dental Health and Neuromuscular Disease
VirtualDental health is an important part of healthy living. For [...]
7th International Myology Congress
Acropolis Congress Center 1 Esplanade John Fitzgerald Kennedy, Nice, FranceAFM-Telethon is pleased to announce that it will hold its 7th International [...]
2022 RARE Patient Advocacy Summit
Town & Country Hotel 500 Hotel Cir N, San Diego, CA, United StatesEach year, Global Genes convenes one of the world’s largest [...]
Externally-Led Patient-Focused Drug Development Session On LGMD
VirtualThe LGMD community will be leading an Externally-Led Patient-Focused [...]
