TREAT-NMD International Conference
Vancouver Convention Centre 1055 Canada Pl, Vancouver, British Columbia, CanadaThe TREAT-NMD Alliance is organizing its 7th international conference focusing [...]
“Intersections with Rare Diseases” hosted by FDA for Rare Disease Day
VirtualFDA to Host 2023 Rare Disease Day VIRTUAL Event "Intersections [...]
2023 Dystroglycanopathy Patient and Family Conference
Keep an eye out for the registration link and [...]
9th Annual LGMD Awareness Day
Worldwide
International LGMD Conference 2023
Grand Hyatt - Washington, D.C. 1000 H St NW, Washington, DC, United StatesThis is the 3rd International Limb Girdle Muscular Dystrophy conference [...]
MDA Virtual Learning Webinar: Disclosing Your Disability at Work
VirtualJoin MDA for a discussion about disclosing your disability at [...]
Advancing the Development of Therapeutics Through Rare Disease Patient Community Engagement
VirtualThis public virtual meeting will discuss approaches and opportunities for [...]
LGMD Scientific Workshop
"Academic medical experts, senior leaders from the U.S. Food and [...]
LGMDR9 (LGMD2i) European Patient Day
Double Tree by Hilton, Amsterdam, The NetherlandsExcited to share about the first LGMDR9 (LGMD2I) European Patient [...]
2024 Living Rare, Living Stronger NORD Patient & Family Forum
Join NORD on June 7-8 in Universal City, Los Angeles, [...]
Empowered Parenting: Thriving as a Single Parent Raising a Rare Disease Child
VirtualAre you a single parent to a child or children [...]
2024 Dystroglycanopathy Patient and Family Conference
Hyatt Regency and Conference Center Coralville, IA 300 E. 9th Street, Coralville, Iowa, United StatesRegistration for the 2024 Iowa Wellstone Dystroglycanopathy Patient & Family [...]
