Advancing the Development of Therapeutics Through Rare Disease Patient Community Engagement
VirtualThis public virtual meeting will discuss approaches and opportunities for [...]
LGMD Scientific Workshop
"Academic medical experts, senior leaders from the U.S. Food and [...]
LGMDR9 (LGMD2i) European Patient Day
Double Tree by Hilton, Amsterdam, The NetherlandsExcited to share about the first LGMDR9 (LGMD2I) European Patient [...]
2024 Living Rare, Living Stronger NORD Patient & Family Forum
Join NORD on June 7-8 in Universal City, Los Angeles, [...]
Empowered Parenting: Thriving as a Single Parent Raising a Rare Disease Child
VirtualAre you a single parent to a child or children [...]
2024 Dystroglycanopathy Patient and Family Conference
Hyatt Regency and Conference Center Coralville, IA 300 E. 9th Street, Coralville, Iowa, United StatesRegistration for the 2024 Iowa Wellstone Dystroglycanopathy Patient & Family [...]
Nutrition with a Neuromuscular Disease: What You Should Know
Virtual💚Nutrition with a Neuromuscular Disease: What You Should Know [...]
KU LGMD Patient Day
KU Clinical Researh Building Auditorium 4350 Shawnee Mission Pkwy, Fairway, KS, United StatesSAVE THE DATE! WHEN: August 10, 2024 from 10a-3p WHERE: [...]
LGMD Day on the Hill 2024
Washington, D.C.LGMD Day on the Hill AGENDA: S E P T [...]
Connecting For A Cure Casino Night 2024
Hotel West & Main 46 Fayette St, Conshohocken, PA, United StatesConnecting for a Cure - Casino Night - September 21st! [...]
MDA Learning Series on Equipment and Assistive Technology
VirtualThis MDA Virtual Learning Series aims to provide relevant, up-to-date [...]
MDA Learning Series on Equipment and Assistive Technology
VirtualThis MDA Virtual Learning Series aims to provide relevant, up-to-date [...]
