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2022 Dystroglycanopathy Patient and Family Conference
Coralville Marriott Hotel & Conference Center 300 E 9th St, Coralville, IA, United StatesMark your calendars for the 2022 Dystroglycanopathy Patient and Family [...]
MDA Engage: Dental Health and Neuromuscular Disease
VirtualDental health is an important part of healthy living. For [...]
7th International Myology Congress
Acropolis Congress Center 1 Esplanade John Fitzgerald Kennedy, Nice, FranceAFM-Telethon is pleased to announce that it will hold its 7th International [...]
2022 RARE Patient Advocacy Summit
Town & Country Hotel 500 Hotel Cir N, San Diego, CA, United StatesEach year, Global Genes convenes one of the world’s largest [...]
Externally-Led Patient-Focused Drug Development Session On LGMD
VirtualThe LGMD community will be leading an Externally-Led Patient-Focused [...]
Free
Connecting for a Cure!
The Barn at Stoner Commons (Overlook Park) 605 Granite Run Drive, Lancaster, PA, United StatesFundraising event for LGMD2I research.
MDUK Muscles Matter 2022: Limb-girdle muscular dystrophy
Virtual"We are holding an online seminar on Tuesday 4 October [...]
Limb Girdle Muscular Dystrophy USA Masterclass
VirtualThe Limb Girdle Muscular Dystrophy USA Masterclass will take place [...]
TREAT-NMD International Conference
Vancouver Convention Centre 1055 Canada Pl, Vancouver, British Columbia, CanadaThe TREAT-NMD Alliance is organizing its 7th international conference focusing [...]
“Intersections with Rare Diseases” hosted by FDA for Rare Disease Day
VirtualFDA to Host 2023 Rare Disease Day VIRTUAL Event "Intersections [...]
Free
2023 Dystroglycanopathy Patient and Family Conference
Keep an eye out for the registration link and [...]
