Name: Outcome Measures: What Are They and Why Are They Important For Clinical Trials
Start: 2021-03-26T14:00:00+00:00
End: 2021-03-26T15:00:00+00:00
Location: Virtual

LGMD Awareness Day Toolkit

The LGMD Awareness Foundation is on a mission to shine a global spotlight on limb-girdle muscular dystrophy (LGMD) and champion the cause for improved access to diagnosis, care, and treatment for those living with this condition. As we celebrate a decade of progress, we will be rolling out an Awareness Day Toolkit in spring of 2024, designed to empower and engage our community in advocacy like never before.

LGMD Awareness Day Toolkit

Spotlights

Explore our ‘Spotlights’ section, where we shine a light on the inspiring stories and invaluable contributions of individuals with LGMD, their dedicated caregivers, supporting organizations, and the clinicians who support them.

List
Month
Day

March 2021

March 23, 2021 @ 4:00 pm - 5:00 pm

Gene Therapy and Neuromuscular Disease Webinar

Virtual

March 26, 2021 @ 2:00 pm - 3:00 pm

Outcome Measures: What Are They and Why Are They Important For Clinical Trials

Virtual

Meet
Girdie

LGMD Awareness Day Toolkit

About LGMD Awareness Day

Initiatives

Resources

Knowledge Base

Genetic Testing

All About LGMD

Navigate LGMD

Community Network

LGMD Advocacy Bundle (LAB) Program

Spotlights

Individuals With LGMD

LGMD Researchers

LGMD Clinic Staff

LGMD Organizations

Events

March 2021

Gene Therapy and Neuromuscular Disease Webinar

Outcome Measures: What Are They and Why Are They Important For Clinical Trials

Sign up for email updates!

Meet Girdie

LGMD Awareness Day Toolkit

About LGMD Awareness Day

Initiatives

Resources

Knowledge Base

Genetic Testing

All About LGMD

Navigate LGMD

Community Network

LGMD Advocacy Bundle (LAB) Program

Spotlights

Individuals With LGMD

LGMD Researchers

LGMD Clinic Staff

LGMD Organizations

Events

March 2021

Sign up for email updates!

Meet
Girdie